Dear All, because many of the movement disorder specialists will be in Europe in late September at the International Congress of Parkinson’s & Movement Disorders, we have changed the dates of the Dystonia Awareness Week on the government calendar from 20-27 September to 7-14 September 2019

Australian Dystonia Awareness Week  7th – 14th September 2019 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release  and  news stories  pages on our web site for updates. For more information about Dystonia go to  or email us on 


The Dystonia Network of Australia Inc. (DNA) Advisory Board To May 2015

Name Position
Associate Professor Victor Fung Director Movement Disorders Unit, Department of Neurology, Westmead Hospital & Sydney Medical School, University of Sydney
Associate Professor John O’Sullivan Coordinator of Movement Disorders Service, Royal Brisbane & Women’s Hospital, Associate Professor of Medicine at the University of Queensland
Associate Professor Thomas Kimber Neurologist, Adelaide
Doctor Neil Mahant MBBS PhD FRACP, Department of Neurology, Westmead Hospital, Sydney
Doctor Stephen Tisch Consultant Neurologist, Staff Specialist in Neurology, Head of Neurophysiology, St Vincent’s Hospital, Conjoint Senior Lecturer University of New South Wales
Doctor Richard Peppard Movement Disorder Neurologist, Hawthorn, Victoria
Doctor Benjamin Jonker Neurosurgeon, Royal Prince Alfred Hospital and St Vincent’s Hospital, Sydney
Doctor Jeff Blackie Department of Neurology, John Hunter Hospital, Newcastle
Doctor Florence Chang Department of Neurology, Westmead Hospital, Sydney Neurologist
Doctor Department of Neurology, The Children’s Hospital at Westmead, Sydney
Associate Professor Russell Dale Department of Neurology, The Children’s Hospital at Westmead, Sydney
Doctor Michel Tchan Clinical Geneticist, Genetic Medicine, Westmead Hospital, Sydney
Doctor Paul Schnitzler General Practitioner, Lindfield Medical Practice, Lindfield, Sydney
Professor Lynley Bradnam Professor of Physiotherapy, New Zealand
Melani Boyce Senior Physiotherapist in Neurology, Westmead Hospital, Sydney
Graham Menzies Clinical Neuropsychologist, Department of Medical Psychology, Westmead Hospital, Sydney
Helen Brake Speech Pathology Manager,  Sydney
Brigitte Moseley Pharmacist, Blue Mountains
Barbara Spiteri Clinical Nurse Educator/ Movement Disorders Clinical Support Nurse, St Vincent’s Private Hospital, Sydney
Mary Jones Parkinson’s disease/ Movement Disorders Specialist Clinic Nurse, Hawthorn, Victoria
David Tsui Clinical Nurse Consultant/Movement Disorders, Department of Neurology, Westmead Hospital
David White Retired lawyer, Blue Mountains
Sue Kennedy Office Manager, Cerebral Palsy Centre, Melbourne & Advocate for children living with Dystonia, Victoria
Margot Chiverton Advocate for people living with Dystonia, South Australia
Greg Partington Advocate for people living with Dystonia, NSW




Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.    

Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON), May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.

We are registered with the Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

ICD  Classification lnternational  Statistical  Classification  of  Diseases and  Related Health Problems 
(lCD),  a  medical classification list by the World  Health Organisation (WHO). lt contains codes for  diseases,  signs  and symptoms,  abnormal  findings,  complaints,  social circumstances,  and external  causes  of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.

Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR)  status 2014.