Australian Dystonia Awareness Week  7th – 14th September 2019 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce Australia’s Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. We are indebted to Grainger films who decided to professionally  produce the dystonia awareness radio ad pro-bono which is now out at radio stations across Australia via Livermore Media. Please let us know if you hear it. We have our awareness days as follows: Royal North Shore Hospital Sydney: Monday 2nd September 2019 in the Main Foyer from 10am – 5pm.  St Vincent’s Hospital Sydney: Wednesday 11th September 2019 on the Mezzanine level from 10am – 5pm. We have chosen these dates to cover the Movement disorder or Botulinum Toxin clinics. If you live nearby come and chat to us or spend some time assisting at the booths. For more information please email us. The GP Education dates, we will have a booth, at Sydney – Saturday 24th August 2019 and Adelaide – 14th September 2019.  Also let us know if you want to do something special to celebrate Dystonia Awareness Week. We are happy to support you. Stay tuned to our  press release  and  news stories  pages on our web site for updates. For more information you can email us


DNA Dystonia 0.30 sec.  Radio Ad          

The Dystonia Network of Australia Inc. (DNA) Advisory Board To May 2015

Name Position
Associate Professor Victor Fung Director Movement Disorders Unit, Department of Neurology, Westmead Hospital & Sydney Medical School, University of Sydney
Associate Professor John O’Sullivan Coordinator of Movement Disorders Service, Royal Brisbane & Women’s Hospital, Associate Professor of Medicine at the University of Queensland
Associate Professor Thomas Kimber Neurologist, Adelaide SA
Doctor Neil Mahant MBBS PhD FRACP, Department of Neurology, Westmead Hospital, Sydney
Doctor Stephen Tisch Consultant Neurologist, Staff Specialist in Neurology, Head of Neurophysiology, St Vincent’s Hospital, Conjoint Senior Lecturer University of New South Wales
Doctor Richard Peppard Movement Disorder Neurologist, Hawthorn, Victoria
Doctor Benjamin Jonker Neurosurgeon, Royal Prince Alfred Hospital and St Vincent’s Hospital, Sydney
Doctor Jeff Blackie Department of Neurology, John Hunter Hospital, Newcastle
Doctor Florence Chang Department of Neurology, Westmead Hospital, Sydney Neurologist
Doctor Julian Rodrigues MBBS, FRACP  Neurologist, Perth WA
Associate Professor Russell Dale Department of Neurology, The Children’s Hospital at Westmead, Sydney
Doctor Shekeeb Mohammad Department of Neurology, The Children’s Hospital at Westmead, Sydney
Doctor Michel Tchan Clinical Geneticist, Genetic Medicine, Westmead Hospital, Sydney
Melani Boyce Senior Physiotherapist in Neurology, Westmead Hospital, Sydney
Associate Professor Lynley Bradnam Physiotherapist, University of Auckland, New Zealand.
Julie Rope Physiotherapist, New Zealand
Graham Menzies Clinical Neuropsychologist, Department of Medical Psychology, Westmead Hospital, Sydney
Helen Brake Speech Pathology Manager,  Sydney
Brigitte Moseley Pharmacist, Blue Mountains
Barbara Spiteri Clinical Nurse Educator/ Movement Disorders Clinical Support Nurse, St Vincent’s Private Hospital, Sydney
Mary Jones Parkinson’s disease/ Movement Disorders Specialist Clinic Nurse, Hawthorn, Victoria
David Tsui Clinical Nurse Consultant/Movement Disorders, Department of Neurology, Westmead Hospital
David White Retired lawyer, Blue Mountains
Sue Kennedy Office Manager, Cerebral Palsy Centre, Melbourne & Advocate for children living with Dystonia, Victoria
Greg Partington Advocate for people living with Dystonia, NSW




Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.    

Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON), May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.

We are registered with the Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

ICD  Classification lnternational  Statistical  Classification  of  Diseases and  Related Health Problems 
(lCD),  a  medical classification list by the World  Health Organisation (WHO). lt contains codes for  diseases,  signs  and symptoms,  abnormal  findings,  complaints,  social circumstances,  and external  causes  of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.

Registered Charity ABN:  66 348 949 649, Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR)  status 2014 and a Medical and multidisciplinary Advisory Board.