ADVISORY BOARD APPROVED BROCHURES
PROVIDED & WRITTEN BY DNA Inc.
Australian Dystonia Awareness Week 7th – 14th September 2019 Inclusive.
Dystonia Network of Australia Inc. (DNA) is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release and news stories pages on our web site for updates. For more information about Dystonia go to dystonia.org.au or email us on info@dystonia.org.au
Merz Pharmaceuticals has once again donated 100 translated copies of Jean-Pierre Bleton’s book for physiotherapists – Spasmodic Torticollis – A physiotherapy handbook –
If you would like a copy for your physio please contact DNA on info@dystonia.org.au with your request and postal address. There is no cost for the book but there is a P&P fee of $8.00. You can pay this fee into Dystonia Network of Australia Inc’s bank account: BSB 633 000 Account number: 163 138 233. Many thanks to Debbie Marques and Merz Pharmaceuticals for providing the books.
Physiotherapists / Neurophysiologists /Speech Pathologists / Occupational Therapists. AUST./ NZ.
NSW
Melani Boyce, physiotherapist, can now see patients with dystonia at Westmead Hospital, Sydney. You can contact her at:
Physiotherapy department
Westmead Hospital
PO Box 533
Wentworthville, NSW, 2145
Ph: 8890 6500 Fax: 8890 7102
Email: melani.boyce@health.nsw.gov.au
Please forward a referral from your Neurologist to the Physiotherapy department and you will be contacted to arrange an appointment time.
Attention all
Do you have cervical dystonia and can walk without assistance?
Functional Screening Tests in Cervical Dystonia Westmead 2018
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Amanda Sleeman Senior Neurological Physiotherapist
APAM Coffs Neuro Physio – division of Coffs Physiotherapy & Backcare
P: (02) 6651 1745
M: 0432 160 181 A: 81 West High st, Coffs Harbour NSW 2450
Brain Injury Rehabilitation Unit Liverpool Hospital Locked Bag 7103 Liverpool BC 1871 NSW Ph: (02) 9828 5495 Fax: 02 9828 5497 Email:SWSLHD.SpasticityManagementService@sswahs.nsw.gov.au
Website: https://www.swslhd.health.nsw.gov.au/liverpool/biru/unit.html
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Neurological Disability Services
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ACT
Neurospace – Neurological & Vestibular Rehabilitation
Address: 10 Colbee Court Phillip, ACT 2606 Ph: (02) 6162 0450 (02) 6162 2385
Fax: (02) 6162 0435
Email: reception@neurospace.com.au
Web: www.neurospace.com.au
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SA
James McLoughlin Neurophysiologist
296 Payneham St.Payneham, Adelaide SA 5070
Ph: 08 8363 0458 Fax: 08 8363 0675 Website: http://neurophysiotherapy.com.au/
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VIC
KLINT Intensive Neuro Therapies
Peak MSK Specialist Physiotherapy Clinic: 4 / 546 Hampton St, Hampton VIC 3188
and Super Spine Physiotherapy: 380 Springvale Rd, Forest Hill VIC 3131, Ph: 0434 313 897
Website: http://www.klintneuro.com.au/
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Neuro-Solutions: Blackburn South Ph: (03) 9893 3598 or admin@neuro-solutions.net or gavin@neuro-solutions.net Steps Neurological Therapy Services: 33 Warrigal Rd. Hughesdale Vic. 3166 Beleura Health Solutions: 945 Nepean Highway, Mornington Vic. 3931 Bellbird Sports & Spinal: 2 Darook St (Cnr Blackburn Rd.) Blackburn South Vic. 3130
Ph: (03) 9568 5611 or Website: http://www.stepstherapy.com.au/
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Independent Rehabilitation Services:
Neuro Physiotherapy, Speech Pathologists and Occupational Therapists
47A Kamak Rd, Ashburton VIC 3147 Ph: (03) 9885 2533 or Website: http://independent-rehab.com.au/
Dandenong Neurology & Specialists Group
Speech Pathologist 136 David Street Dandenong, VIC 3175 Ph: (03) 9791 1599 Website: http://www.dandenongneurology.com.au/
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WA
Neuro Link Physiotherapy: Duncraig Physiotherapy & Pilates 20 Burragah Way, Duncraig WA 6023
Mob: 0431 905 585 Ph: 9448 8239 Fax: 9246 9704
Email: fiona@neurolinkphysio.com.au
Website: http://www.neurolinkphysio.com.au/
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Pain Options: Darren Beales
7 Hardy St South Perth, WA, 6151 Ph: (08) 9367 2300
Email: admin@painoptions.com.au Website: https://www.painoptions.com.au/
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QLD
Sue Lister Physiotherapy
3/589 Robinson Road Aspley QLD. Ph: (07)3160 6922 or
Email: Info@suelisterphysio.com.au
Website: http://suelisterphysio.com.au/
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Dr Joanne Bullock-Saxton Ph:(07) 3163 1188
Email: http://activerehab.com.au/teammember/dr-joanne-bullock-saxton/
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Prevention and Rehabilitation Centre
Ph: (07) 3834 4285 or Email: sawmh.preventionandrehab@uchealth.com.au
Website: http://standrewshospital.com.au/services/rehabilitation
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Jennie McCorkell, My Turn Rehabilitation: Ph:(07) 3391 0618 Fax: (07) 3217 4330
Email: admin@myturn.com.au Website: http://myturn.com.au/jennie-mccorkell/
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NT
Top End Rehabilitation: Unit 2 / 48 Woods St. Darwin NT. 0800 Ph: (08) 8981 5124 Fax: (08) 8941 8490 Email: Paul.Gerken@nt.gov.au (Senior Neuro Physio) darwin@northcare.com.au Website: http://northcare.com.au/
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Territory Therapy Solutions OT
3/7 GSELL St. WANGURI Northern Territory 0810
Ph: (08)8927 0469 Email: office@territorytherapysolutions.com.au Website: http://www.therapysolutions.com.au/
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New Zealand
Cervical Dystonia Research Survey is now live.
Dear members and sufferers of people with Cervical Dystonia who continue to exercise would you please consider completing this survey link below which has been sent to us by Associate Professor Lynley Bradnam University of Auckland, New Zealand. Follow this link below to the Survey:
https://auckland.au1.qualtrics.com/jfe/form/SV_2aeVmCOIOmfJTMh
With permission of Professor Lynley Bradnam University of Auckland, New Zealand.
Gilly Davy Has moved back to NZ
Connect Neuro Physiotherapy (Gilly Davy)
Email: gilly@connectneurophysiotherapy.com
Online Consultations for more information go to Gilly’s website
Website: http://www.connectneurophysiotherapy.com/
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Julie Rope
Based in Auckland – New Zealand
Director and Senior Neuro Physiotherapist
Rope Neuro Rehabilitation Ltd and Clinical Lead for the Duncan Foundation
www.ropeneurorehab.co.nz 021 753 279
http://www.onlineneurophysio.co.nz julie@ropeneurorehab.co.nz
www.duncanfoundation.org admin@ropeneurorehab.co.nz