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Australian Dystonia Awareness Week 7th – 14th September 2019 Inclusive.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release  and  news stories  pages on our web site for updates. For more information about Dystonia go to  dystonia.org.au  or email us on info@dystonia.org.au 



Jean-Pierre Bleton's book. A physiotherapy handbook

Merz Pharmaceuticals has once again donated 100 translated copies of Jean-Pierre Bleton’s book for physiotherapists – Spasmodic Torticollis – A physiotherapy handbook –

If you would like a copy for your physio please contact DNA on info@dystonia.org.au with your request and postal address. There is no cost for the book but there is a P&P fee of $8.00. You can pay this fee into Dystonia Network of Australia Inc’s bank account: BSB 633 000 Account number: 163 138 233. Many thanks to Debbie Marques and  Merz Pharmaceuticals for providing the books.



Physiotherapists / Neurophysiologists /Speech Pathologists / Occupational Therapists.  AUST./ NZ.


Melani Boyce, physiotherapist, can now see patients with dystonia at Westmead Hospital, Sydney. You can contact her at:

Physiotherapy department
Westmead Hospital
PO Box 533
Wentworthville, NSW, 2145
Ph: 8890 6500   Fax: 8890 7102
Email: melani.boyce@health.nsw.gov.au

Please forward a referral from your Neurologist to the Physiotherapy department and you will be contacted to arrange an appointment time.

Attention all

 Do you  have cervical  dystonia  and  can  walk  without  assistance?


Functional  Screening  Tests  in  Cervical  Dystonia Westmead 2018







Adance Rehab Centre 

41 Herbert Street, Artarmon New South Wales 2064    

Phone:  (02)  9906 7777

Website: https://www.archealth.com.au/




Amanda  Sleeman Senior Neurological  Physiotherapist

                                                                                                                  APAM                                                                                                                                                                                                               Coffs Neuro Physio – division of Coffs Physiotherapy & Backcare 

 P:  (02) 6651 1745

M: 0432 160 181                                                                                                                                                                                                                 A:  81 West High st, Coffs Harbour NSW 2450 

E:  amanda@coffsphysio.au



Brain Injury Rehabilitation Unit                                                                                                                                                                                                  Liverpool Hospital Locked Bag 7103 Liverpool BC 1871 NSW                                                                                                                                                                                                         Ph: (02) 9828 5495     Fax: 02 9828 5497                                                                                    Email:SWSLHD.SpasticityManagementService@sswahs.nsw.gov.au                                       

 Website: https://www.swslhd.health.nsw.gov.au/liverpool/biru/unit.html





Neurological Disability Services  

Daniel Buck:                                                     Alissa Leyland:
APA Neurological Physiotherapist      &      Physiotherapist                                                                                                                                                                                                                                                                                                                              Neuro Alliance  is a  Community Based  practice with  Clinic days at Cardiff and Greenhills
PO Box 13, East Maitland, NSW 2323   Ph: 1300 955 941   Email:  admin@neuroalliance.clinic  Website:   http://neuroalliance.clinic/   




Neurospace –  Neurological & Vestibular Rehabilitation

Address:   10 Colbee Court Phillip,  ACT  2606                                                                                                                                                                                                                             Ph:  (02) 6162 0450  (02) 6162 2385
Fax:   (02) 6162 0435
Email:  reception@neurospace.com.au
Web:   www.neurospace.com.au






James McLoughlin   Neurophysiologist

                                                                                                                                                                                                    296 Payneham St.Payneham, Adelaide SA 5070
Ph: 08 8363 0458  Fax: 08 8363 0675                                                                                                                                                                                                      Website: http://neurophysiotherapy.com.au/




KLINT Intensive Neuro Therapies                                                                                                                         
Peak MSK Specialist Physiotherapy Clinic:  4 / 546 Hampton St, Hampton VIC 3188
and   Super Spine Physiotherapy:  380 Springvale Rd, Forest Hill VIC 3131,  Ph:  0434 313 897
Website: http://www.klintneuro.com.au/  


Neuro-Solutions:                                                                                                                                                                      Blackburn South Ph: (03) 9893 3598 or admin@neuro-solutions.net  or gavin@neuro-solutions.net                          Steps Neurological Therapy Services: 33 Warrigal  Rd. Hughesdale Vic. 3166                                                    Beleura Health Solutions:  945 Nepean Highway, Mornington Vic. 3931                                                                         Bellbird Sports & Spinal:  2 Darook St (Cnr Blackburn Rd.) Blackburn South Vic. 3130
Ph: (03) 9568 5611 or Website:  http://www.stepstherapy.com.au/  


Independent Rehabilitation Services:                                                                                                                   
Neuro Physiotherapy, Speech
Pathologists and  Occupational Therapists
47A Kamak Rd, Ashburton VIC 3147
    Ph: (03) 9885 2533 or Website:  http://independent-rehab.com.au/ 

Dandenong Neurology & Specialists Group

Speech Pathologist                                                                                                                                                                                                   136 David Street Dandenong, VIC 3175   Ph:  (03) 9791 1599   Website:   http://www.dandenongneurology.com.au/





Neuro Link Physiotherapy:  Duncraig Physiotherapy & Pilates                                                                                                                                                                                                                         20 Burragah Way, Duncraig WA 6023
Mob: 0431 905 585  Ph9448 8239  Fax: 9246 9704
Email: fiona@neurolinkphysio.com.au     


Pain Options:  Darren Beales
7 Hardy St South Perth, WA, 6151     Ph: (08) 9367 2300

Email:  admin@painoptions.com.au    Website: https://www.painoptions.com.au/



Sue Lister Physiotherapy
3/589 Robinson Road Aspley QLD.   Ph: (07)3160 6922 or
Email: Info@suelisterphysio.com.au
Website: http://suelisterphysio.com.au/ 


Dr Joanne Bullock-Saxton                                                                                                                                                  Ph:(07) 3163 1188


Prevention and Rehabilitation Centre
(07) 3834 4285 or Email: sawmh.preventionandrehab@uchealth.com.au
Website: http://standrewshospital.com.au/services/rehabilitation 


Jennie McCorkell,  My Turn Rehabilitation:                                                                                                                        Ph:(07) 3391 0618   Fax: (07)  3217 4330
                                                                                                                                               Website: http://myturn.com.au/jennie-mccorkell/



                                                                                                                                                                            Top End Rehabilitation:                                                                                                                                                                 Unit 2 / 48  Woods St. Darwin NT. 0800     Ph: (08) 8981 5124    Fax: (08) 8941 8490                           Email: Paul.Gerken@nt.gov.au  (Senior Neuro Physio)  darwin@northcare.com.au                                                             Website: http://northcare.com.au/ 


Territory Therapy Solutions   OT
3/7 GSELL St. WANGURI Northern Territory 0810
Ph: (08)8927 0469                                                                                                                                                                      Email: 
office@territorytherapysolutions.com.au                                                                                                     Website: http://www.therapysolutions.com.au/ 


New Zealand

Cervical Dystonia Research Survey is now live.

Dear members and sufferers of  people with Cervical Dystonia who continue to exercise  would you please consider completing this survey link below which has been sent to us by Associate Professor Lynley Bradnam  University of Auckland, New Zealand. Follow this link below to the Survey: 

Letter from Dr Lynley Bradnam


With permission of  Professor Lynley Bradnam  University of Auckland, New Zealand.


Gilly Davy  Has moved back to NZ

Connect Neuro Physiotherapy  (Gilly Davy)

Email: gilly@connectneurophysiotherapy.com

                                                                                                                                                                                            Online Consultations for more information go to Gilly’s website
Website: http://www.connectneurophysiotherapy.com/



Julie Rope
Based in Auckland – New Zealand                    

Director and Senior Neuro Physiotherapist
Rope Neuro Rehabilitation Ltd and Clinical Lead for the Duncan Foundation

www.ropeneurorehab.co.nz                                                           021 753 279
http://www.onlineneurophysio.co.nz                                           julie@ropeneurorehab.co.nz
www.duncanfoundation.org                                                          admin@ropeneurorehab.co.nz