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ADVISORY BOARD APPROVED BROCHURES  
PROVIDED & WRITTEN BY DNA Inc.

  

    Australian Dystonia Awareness Week 5th – 12th September 2020 Inclusive.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce that the  Australian Dystonia Awareness Week on the Government Calendar for 2020 is 5th – 12th September inclusive. We are indebted to Grainger films who decided to professionally  produce the dystonia awareness radio ad for us pro-bono.  Stay tuned to our press release  and news stories pages on our web site for updates. For more information you can also email us mailto:info@dystonia.org.au

DNA Dystonia 0.30 sec.  Radio Ad

9/9/19

ABC Health Report on Dystonia

Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Associate Professor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link: https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220

With Permission of                                                                                                                                                                                                                          James Bullen
Producer, Health Report,                                                                                                                                                                                                                                                                       ABC Radio National  Sydney, Australia

 

 

Jean-Pierre Bleton's book. A physiotherapy handbook

Merz Pharmaceuticals has once again donated 100 translated copies of Jean-Pierre Bleton’s book for physiotherapists – Spasmodic Torticollis – A physiotherapy handbook –

If you would like a copy for your physio please contact DNA on info@dystonia.org.au with your request and postal address. There is no cost for the book but there is a P&P fee of $9.00. You can pay this fee into Dystonia Network of Australia Inc’s bank account: BSB 633 000 Account number: 163 138 233. Many thanks to Debbie Marques and  Merz Pharmaceuticals for providing the books.

 

Physiotherapists / Neurophysiologists /Speech Pathologists / Occupational Therapists.  AUST./ NZ.

 

NSW:

17/06/20                                       Dystonia Related Pain Survey 

                                                                                                                                                                                                                                        Dear All,
We urge you to consider participating in this online Dystonia Survey by Dr Alana McCambridge:
INFORMATION SHEET AND CONSENT FORM FOR ONLINE SURVEYS:
Attached is a small advert that we are using for the study, and the survey link is here: https://protect-au.mimecast.com/s/eVzCCNLJ8nf9k3nlIm_a0w?domain=utsau.au1.qualtrics.com
Participants can also access the link via my twitter profile:
https://twitter.com/AlanaMcC_PhD/status/1272675107438129152?s=20
The final part of the survey is tricky to read as it tries to look into using the ‘new classification system’ for dystonia so if you are aware of people struggling to answer that section at the end they have the option of answering “I don’t know” as well.

Dr Alana McCambridge, PhD
Lecturer, Research RAO Physiotherapy
Graduate School of Health, Physiotherapy
University of Technology Sydney
T. +61 (02) 9514 7222
Building 20, level 6
PO Box 123 Broadway NSW 2007 Australia
uts.edu.au

With permission of Dr Alana McCambridge, PhD Lecturer UTS Sydney

 

Melani Boyce, physiotherapist, can now see patients with dystonia at Westmead Hospital, Sydney. You can contact her at:

Physiotherapy department
Westmead Hospital
PO Box 533
Wentworthville, NSW, 2145
Ph: 8890 6500   Fax: 8890 7102
Email: melani.boyce@health.nsw.gov.au

Please forward a referral from your Neurologist to the Physiotherapy department and you will be contacted to arrange an appointment time.

Attention all

 Do you  have cervical  dystonia  and  can  walk  without  assistance?

 

Functional  Screening  Tests  in  Cervical  Dystonia Westmead 2018

 

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Brain Injury Rehabilitation Unit                                                                                                                                                                                                  Liverpool Hospital Locked Bag 7103 Liverpool BC 1871 NSW                                                                                      Ph: (02) 9828 5495     Fax: 02 9828 5497                                                                                    Email:SWSLHD.SpasticityManagementService@sswahs.nsw.gov.au                                       

Website: https://www.swslhd.health.nsw.gov.au/liverpool/biru/unit.html

 

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Adance Rehab Centre 

41 Herbert Street, Artarmon New South Wales 2064    

Phone:  (02)  9906 7777

Website: https://www.archealth.com.au/

 

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Lady Davidson Private Hospital

Outpatient rehabilitation: Physiotherapy, Occupational therapy,

Speech pathology, Psychologist,

434 Bobbin Head Road, North Turramurra

NSW 2074.  Phone: (02) 9488 0169

Website: https://ladydavidsonprivatehospital.com.au/services/outpatients

 

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Amanda Sleeman Senior Neurological Physiotherapist

APAM

Coffs Neuro Physio -division of Coffs Physiotherapy & Backcare

Phone: (02) 6651 1745  Mobile: 0432 160 181

Address: 81 West St. Coffs Harbour NSW 2450

Email: amanda@coffsphysio.au

 

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Neurological Disability Services  

Daniel Buck:  APA Neurological Physiotherapist                                                                                                              & Alissa Leyland:  Physiotherapist

Neuro Alliance is a communitty  based practice with clinic days at Cardiff and Greenhills                                      PO Box 13, East Maitland NSW 2323                                                                                                                       Phone: 1300 955 941               

 

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ACT:

Neurospace –  Neurological & Vestibular Rehabilitation

Address:   10 Colbee Court Phillip,  ACT  2606                                                                                                                                                                                                                             Ph:  (02) 6162 0450  (02) 6162 2385
Fax:   (02) 6162 0435
Email:  reception@neurospace.com.au
Web:   www.neurospace.com.au

 

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SA:

James McLoughlin   Neurophysiologist

                                                                                                                                                                                                    296 Payneham St.Payneham, Adelaide SA 5070
Ph: 08 8363 0458  Fax: 08 8363 0675                                                                                                                                                                                                      Website: http://neurophysiotherapy.com.au                                        

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VIC:

KLINT Intensive Neuro Therapies                                                                                                                         
Peak MSK Specialist Physiotherapy Clinic:  4 / 546 Hampton St, Hampton VIC 3188
and   Super Spine Physiotherapy:  380 Springvale Rd, Forest Hill VIC 3131,  Ph:  0434 313 897
Website: http://www.klintneuro.com.au/  

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Neuro-Solutions:                                                                                                                                                                      Blackburn South Ph: (03) 9893 3598 or admin@neuro-solutions.net  or gavin@neuro-solutions.net                          Steps Neurological Therapy Services: 33 Warrigal  Rd. Hughesdale Vic. 3166                                                    Beleura Health Solutions:  945 Nepean Highway, Mornington Vic. 3931                                                                         Bellbird Sports & Spinal:  2 Darook St (Cnr Blackburn Rd.) Blackburn South Vic. 3130
Ph: (03) 9568 5611 or Website:  http://www.stepstherapy.com.au/  

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Independent Rehabilitation Services:                                                                                                                   
Neuro Physiotherapy, Speech
Pathologists and  Occupational Therapists
47A Kamak Rd, Ashburton VIC 3147
    Ph: (03) 9885 2533 or                                                                                                Website:  http://independent-rehab.com.au/ 

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Dandenong Neurology & Specialists Group

Speech Pathologist                                                                                                                                                                                                   136 David Street Dandenong, VIC 3175   Ph:  (03) 9791 1599   Website:   http://www.dandenongneurology.com.au/

 

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WA:

Transitions Physiotherapy Perth                                                                                                                                        Mobile Neurological physiotherapy                                                                                                                Phone: 0416 492 491   Perth WA.                                                                                                  Email: transitionsphysiotherapyperth@gmail.com  Website:  https://www.transitionsphysiotherapyperth.com.au/

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Neuro Link Physiotherapy:  Duncraig Physiotherapy & Pilates                                                                                                                                                                                                                         20 Burragah Way, Duncraig WA 6023
Mob: 0431 905 585  Ph9448 8239  Fax: 9246 9704
Email: fiona@neurolinkphysio.com.au     
Website:
http://www.neurolinkphysio.com.au/  

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Pain Options:  Darren Beales
7 Hardy St South Perth, WA, 6151     Ph: (08) 9367 2300

Email:  admin@painoptions.com.au    Website: https://www.painoptions.com.au/

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QLD:

Sue Lister Physiotherapy
3/589 Robinson Road Aspley QLD.   Ph: (07)3160 6922 or
Email: Info@suelisterphysio.com.au
Website: http://suelisterphysio.com.au/ 

____________________________________________________________

Dr Joanne Bullock-Saxton                                                                                                                                                  Ph:(07) 3163 1188
Email:  
http://activerehab.com.au/teammember/dr-joanne-bullock-saxton/ 

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Prevention and Rehabilitation Centre
Ph:
(07) 3834 4285 or Email: sawmh.preventionandrehab@uchealth.com.au
Website: http://standrewshospital.com.au/services/rehabilitation 

____________________________________________________________

Jennie McCorkell,  My Turn Rehabilitation:                                                                                                                        Ph:(07) 3391 0618   Fax: (07)  3217 4330
Email: 
admin@myturn.com.au
                                                                                                                                               Website: http://myturn.com.au/jennie-mccorkell/

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NT:

                                                                                                                                                                            Top End Rehabilitation:                                                                                                                                                                 Unit 2 / 48  Woods St. Darwin NT. 0800     Ph: (08) 8981 5124    Fax: (08) 8941 8490                                            Email: Paul.Gerken@nt.gov.au  (Senior Neuro Physio)  darwin@northcare.com.au                                                                Website: http://northcare.com.au/ 

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Territory Therapy Solutions   OT
3/7 GSELL St. WANGURI Northern Territory 0810
Ph: (08)8927 0469                                                                                                                                                                      Email: 
office@territorytherapysolutions.com.au                                                                                                     Website: http://www.therapysolutions.com.au/ 

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New Zealand:

Cervical Dystonia Research Survey is now live.

Dear members and sufferers of  people with Cervical Dystonia who continue to exercise  would you please consider completing this survey link below which has been sent to us by Associate Professor Lynley Bradnam  University of Auckland, New Zealand. Follow this link below to the Survey: 

Letter from Dr Lynley Bradnam

https://auckland.au1.qualtrics.com/jfe/form/SV_2aeVmCOIOmfJTMh

With permission of  Professor Lynley Bradnam  University of Auckland, New Zealand.

 

Gilly Davy  Has moved back to NZ

Connect Neuro Physiotherapy  (Gilly Davy)

Email: gilly@connectneurophysiotherapy.com

                                                                                                                                                                                            Online Consultations for more information go to Gilly’s website
Website: http://www.connectneurophysiotherapy.com/

_____________________________________________________________

 

Julie Rope
Based in Auckland – New Zealand                    

Director and Senior Neuro Physiotherapist
Rope Neuro Rehabilitation Ltd and Clinical Lead for the Duncan Foundation

www.ropeneurorehab.co.nz                                                           021 753 279
http://www.onlineneurophysio.co.nz                                           julie@ropeneurorehab.co.nz
www.duncanfoundation.org                                                          admin@ropeneurorehab.co.nz