ADVISORY BOARD APPROVED BROCHURES
PROVIDED & WRITTEN BY DNA Inc.
Australian Dystonia Awareness Week 5th – 12th September 2020 Inclusive.
Dystonia Network of Australia Inc. (DNA) is pleased to announce that the Australian Dystonia Awareness Week on the Government Calendar for 2020 is 5th – 12th September inclusive. We are indebted to Grainger films who decided to professionally produce the dystonia awareness radio ad for us pro-bono. Stay tuned to our press release and news stories pages on our web site for updates. For more information you can also email us mailto:info@dystonia.org.au
DNA Dystonia 0.30 sec. Radio Ad
9/9/19
ABC Health Report on Dystonia
Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Associate Professor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link: https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220
With Permission of James Bullen
Producer, Health Report, ABC Radio National Sydney, Australia
Merz Pharmaceuticals has once again donated 100 translated copies of Jean-Pierre Bleton’s book for physiotherapists – Spasmodic Torticollis – A physiotherapy handbook –
If you would like a copy for your physio please contact DNA on info@dystonia.org.au with your request and postal address. There is no cost for the book but there is a P&P fee of $9.00. You can pay this fee into Dystonia Network of Australia Inc’s bank account: BSB 633 000 Account number: 163 138 233. Many thanks to Debbie Marques and Merz Pharmaceuticals for providing the books.
Physiotherapists / Neurophysiologists /Speech Pathologists / Occupational Therapists. AUST./ NZ.
NSW:
17/06/20 Dystonia Related Pain Survey
Dear All,
We urge you to consider participating in this online Dystonia Survey by Dr Alana McCambridge:
INFORMATION SHEET AND CONSENT FORM FOR ONLINE SURVEYS:
Attached is a small advert that we are using for the study, and the survey link is here: https://protect-au.mimecast.com/s/eVzCCNLJ8nf9k3nlIm_a0w?domain=utsau.au1.qualtrics.com
Participants can also access the link via my twitter profile:
https://twitter.com/AlanaMcC_PhD/status/1272675107438129152?s=20
The final part of the survey is tricky to read as it tries to look into using the ‘new classification system’ for dystonia so if you are aware of people struggling to answer that section at the end they have the option of answering “I don’t know” as well.
Dr Alana McCambridge, PhD
Lecturer, Research RAO Physiotherapy
Graduate School of Health, Physiotherapy
University of Technology Sydney
T. +61 (02) 9514 7222
Building 20, level 6
PO Box 123 Broadway NSW 2007 Australia
uts.edu.au
With permission of Dr Alana McCambridge, PhD Lecturer UTS Sydney
Melani Boyce, physiotherapist, can now see patients with dystonia at Westmead Hospital, Sydney. You can contact her at:
Physiotherapy department
Westmead Hospital
PO Box 533
Wentworthville, NSW, 2145
Ph: 8890 6500 Fax: 8890 7102
Email: melani.boyce@health.nsw.gov.au
Please forward a referral from your Neurologist to the Physiotherapy department and you will be contacted to arrange an appointment time.
Attention all
Do you have cervical dystonia and can walk without assistance?
Functional Screening Tests in Cervical Dystonia Westmead 2018
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Brain Injury Rehabilitation Unit Liverpool Hospital Locked Bag 7103 Liverpool BC 1871 NSW Ph: (02) 9828 5495 Fax: 02 9828 5497 Email:SWSLHD.SpasticityManagementService@sswahs.nsw.gov.au
Website: https://www.swslhd.health.nsw.gov.au/liverpool/biru/unit.html
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Lady Davidson Private Hospital
Outpatient rehabilitation: Physiotherapy, Occupational therapy,
Speech pathology, Psychologist,
434 Bobbin Head Road, North Turramurra
NSW 2074. Phone: (02) 9488 0169
Website: https://ladydavidsonprivatehospital.com.au/services/outpatients
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Amanda Sleeman Senior Neurological Physiotherapist
APAM
Coffs Neuro Physio -division of Coffs Physiotherapy & Backcare
Phone: (02) 6651 1745 Mobile: 0432 160 181
Address: 81 West St. Coffs Harbour NSW 2450
Email: amanda@coffsphysio.au
Neurological Disability Services
Daniel Buck: APA Neurological Physiotherapist & Alissa Leyland: Physiotherapist
Neuro Alliance is a communitty based practice with clinic days at Cardiff and Greenhills PO Box 13, East Maitland NSW 2323 Phone: 1300 955 941
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ACT:
Neurospace – Neurological & Vestibular Rehabilitation
Address: 10 Colbee Court Phillip, ACT 2606 Ph: (02) 6162 0450 (02) 6162 2385
Fax: (02) 6162 0435
Email: reception@neurospace.com.au
Web: www.neurospace.com.au
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SA:
James McLoughlin Neurophysiologist
296 Payneham St.Payneham, Adelaide SA 5070
Ph: 08 8363 0458 Fax: 08 8363 0675 Website: http://neurophysiotherapy.com.au
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VIC:
KLINT Intensive Neuro Therapies
Peak MSK Specialist Physiotherapy Clinic: 4 / 546 Hampton St, Hampton VIC 3188
and Super Spine Physiotherapy: 380 Springvale Rd, Forest Hill VIC 3131, Ph: 0434 313 897
Website: http://www.klintneuro.com.au/
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Neuro-Solutions: Blackburn South Ph: (03) 9893 3598 or admin@neuro-solutions.net or gavin@neuro-solutions.net Steps Neurological Therapy Services: 33 Warrigal Rd. Hughesdale Vic. 3166 Beleura Health Solutions: 945 Nepean Highway, Mornington Vic. 3931 Bellbird Sports & Spinal: 2 Darook St (Cnr Blackburn Rd.) Blackburn South Vic. 3130
Ph: (03) 9568 5611 or Website: http://www.stepstherapy.com.au/
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Independent Rehabilitation Services:
Neuro Physiotherapy, Speech Pathologists and Occupational Therapists
47A Kamak Rd, Ashburton VIC 3147 Ph: (03) 9885 2533 or Website: http://independent-rehab.com.au/
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Dandenong Neurology & Specialists Group
Speech Pathologist 136 David Street Dandenong, VIC 3175 Ph: (03) 9791 1599 Website: http://www.dandenongneurology.com.au/
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WA:
Transitions Physiotherapy Perth Mobile Neurological physiotherapy Phone: 0416 492 491 Perth WA. Email: transitionsphysiotherapyperth@gmail.com Website: https://www.transitionsphysiotherapyperth.com.au/
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Neuro Link Physiotherapy: Duncraig Physiotherapy & Pilates 20 Burragah Way, Duncraig WA 6023
Mob: 0431 905 585 Ph: 9448 8239 Fax: 9246 9704
Email: fiona@neurolinkphysio.com.au
Website: http://www.neurolinkphysio.com.au/
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Pain Options: Darren Beales
7 Hardy St South Perth, WA, 6151 Ph: (08) 9367 2300
Email: admin@painoptions.com.au Website: https://www.painoptions.com.au/
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QLD:
Sue Lister Physiotherapy
3/589 Robinson Road Aspley QLD. Ph: (07)3160 6922 or
Email: Info@suelisterphysio.com.au
Website: http://suelisterphysio.com.au/
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Dr Joanne Bullock-Saxton Ph:(07) 3163 1188
Email: http://activerehab.com.au/teammember/dr-joanne-bullock-saxton/
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Prevention and Rehabilitation Centre
Ph: (07) 3834 4285 or Email: sawmh.preventionandrehab@uchealth.com.au
Website: http://standrewshospital.com.au/services/rehabilitation
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Jennie McCorkell, My Turn Rehabilitation: Ph:(07) 3391 0618 Fax: (07) 3217 4330
Email: admin@myturn.com.au Website: http://myturn.com.au/jennie-mccorkell/
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NT:
Top End Rehabilitation: Unit 2 / 48 Woods St. Darwin NT. 0800 Ph: (08) 8981 5124 Fax: (08) 8941 8490 Email: Paul.Gerken@nt.gov.au (Senior Neuro Physio) darwin@northcare.com.au Website: http://northcare.com.au/
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Territory Therapy Solutions OT
3/7 GSELL St. WANGURI Northern Territory 0810
Ph: (08)8927 0469 Email: office@territorytherapysolutions.com.au Website: http://www.therapysolutions.com.au/
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New Zealand:
Cervical Dystonia Research Survey is now live.
Dear members and sufferers of people with Cervical Dystonia who continue to exercise would you please consider completing this survey link below which has been sent to us by Associate Professor Lynley Bradnam University of Auckland, New Zealand. Follow this link below to the Survey:
https://auckland.au1.qualtrics.com/jfe/form/SV_2aeVmCOIOmfJTMh
With permission of Professor Lynley Bradnam University of Auckland, New Zealand.
Gilly Davy Has moved back to NZ
Connect Neuro Physiotherapy (Gilly Davy)
Email: gilly@connectneurophysiotherapy.com
Online Consultations for more information go to Gilly’s website
Website: http://www.connectneurophysiotherapy.com/
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Julie Rope
Based in Auckland – New Zealand
Director and Senior Neuro Physiotherapist
Rope Neuro Rehabilitation Ltd and Clinical Lead for the Duncan Foundation
www.ropeneurorehab.co.nz 021 753 279
http://www.onlineneurophysio.co.nz julie@ropeneurorehab.co.nz
www.duncanfoundation.org admin@ropeneurorehab.co.nz