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ADVISORY BOARD APPROVED BROCHURES
PROVIDED & WRITTEN BY DNA Inc.
Australian Dystonia Awareness Week 7th – 14th September 2019 Inclusive
Dystonia Network of Australia Inc. (DNA) is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release and news stories pages on our web site for updates. For more information about Dystonia go to dystonia.org.au or email us on firstname.lastname@example.org
Australian Movement Disorder Specialists
A visit to your neurologist should be a positive experience where information is exchanged and treatment options are considered in a collaborative way. It is best if questions are written down prior to the consultation so that you do not forget the issues that are important to you and also that you give the doctor any information that may impact on your future treatment.
A neurologist with a special interest in movement disorders will be able to give you the benefit of their experience in treating other patients with dystonia, but keep in mind that everyone is an individual and treatment that is beneficial for some patients does not necessarily suit all patients with the same diagnosis.
Many people find that taking a family member or friend along to the consultation may help in recalling the information discussed. It is important that your General Practitioner is kept in the loop so that he/she can take care of you between visits to the Neurologist.
Doctor Florence Chang A/Professor Victor Fung
Department of Neurology Specialist Medical Centre
Westmead Hospital 151-155 Hawkesbury Road
Westmead NSW 2145 Westmead NSW 2145 Hosp.Tel:02 8890 6793 or Tel: (02) 9633 4999 Private Rooms (02) 9633 4999 Fax: (02) 9893 7524
Doctor Neil Mahant A/Professor Stephen Tisch
Suite 3 Suite 703
Westmead Private Hospital St Vincent’s Clinic
Darcy Road 438 Victoria Street
Westmead NSW 2145 Darlinghurst NSW 2010
Tel: 02 9687 0900 Tel: 02 8382 6715
Doctor Shekeeb Mohammad A/Professor Russell Dale
(Paediatric) Neurologist (Paediatric) Dept. of Neurology
Westmead Medical Centre Westmead Children’s Hospital
Suite 9, level 1 Hainsworth St. Hawkesbury Road Westmead
Westmead NSW 2145 NSW 2145 Tel: 02 9845 2657
Tel: 02 9689 2282 Referral from paediatrician required
A/Professor Karl Ng Doctor Kishore Kumar
Sydney North Neurology & Neurophysiology Sydney North Neurology & Neurophysiology Suite C1 / 210 Willoughby Rd Suite C1 / 210 Willoughby Rd
Naremburn NSW 2065 Naremburn NSW 2065
Tel: (02) 8287 1900 Tel: (02) 8287 1900
Doctor Craig Presgrave A/Professor Mohamed Shaffi
34 Hawkesbury Valley Way Suite 202, Level 2
Windsor NSW 2756 64-68 Derby street Kingswood
Tel: (02) 9793 9200 NSW 2747. Tel:(02) 4737 3400
Neurology Clinic Wollongong Hospital Level 4, Block C Wollongong Public Hospital Tel: (02) 4253 4430 Fax: (02) 4253 4436 http://www.islhd.health.nsw.gov.au/Services/Botulinum_Toxin_Clinic/default.asp
Click the links below to access neurologists with a special interest in movement disorders for other state:
Dystonia Network of Australia Inc.(DNA) is the National Peak Body for All Types of Dystonia.
Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.
We are registered with the Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)
Registered Charity ABN: 66 348 949 649 and Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014