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           Australian Dystonia Awareness Week  7th – 14th September 2019 Inclusive

Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release  and  news stories  pages on our web site for updates. For more information about Dystonia go to  or email us on 



Australian Movement Disorder Specialists

A visit to your neurologist should be a positive experience where information is exchanged and treatment options are considered in a collaborative way. It is best if questions are written down prior to the consultation so that you do not forget the issues that are important to you and also that you give the doctor any information that may impact on your future treatment.

A neurologist with a special interest in movement disorders will be able to give you the benefit of their experience in treating other patients with dystonia, but keep in mind that everyone is an individual and treatment that is beneficial for some patients does not necessarily suit all patients with the same diagnosis.

Many people find that taking a family member or friend along to the consultation may help in recalling the information discussed. It is important that your General Practitioner is kept in the loop so that he/she can take care of you between visits to the Neurologist.

NSW Neurologist

Doctor Florence Chang                                                       A/Professor Victor Fung
Department of Neurology                                                   Specialist Medical Centre
Westmead Hospital                                                             151-155 Hawkesbury Road
Westmead NSW 2145                                                         Westmead NSW 2145   Hosp.Tel:02 8890 6793 or                                                 Tel: (02) 9633 4999 Private Rooms  (02) 9633 4999                                        Fax: (02) 9893 7524


Doctor Neil Mahant                                                            A/Professor  Stephen Tisch
Suite 3                                                                                    Suite 703
Westmead  Private Hospital                                              St Vincent’s Clinic
Darcy Road                                                                            438 Victoria Street
Westmead NSW 2145                                                         Darlinghurst NSW 2010
Tel: 02 9687 0900                                                                Tel: 02 8382 6715



Doctor Shekeeb Mohammad                                              A/Professor Russell Dale
(Paediatric) Neurologist                                                       (Paediatric) Dept. of Neurology
Westmead Medical Centre                                                  Westmead Children’s Hospital
Suite 9, level 1  Hainsworth St.                                           Hawkesbury Road Westmead
Westmead NSW 2145                                                          NSW 2145  Tel: 02 9845 2657
Tel:  02 9689 2282                                                                Referral from paediatrician required


A/Professor Karl Ng                                                             Doctor Kishore Kumar
Sydney North Neurology & Neurophysiology                   Sydney North Neurology & Neurophysiology                                              Suite C1 / 210 Willoughby Rd                                             Suite C1  /  210 Willoughby Rd
Naremburn NSW 2065                                                         Naremburn NSW 2065
Tel: (02) 8287 1900                                                              Tel: (02) 8287 1900


Doctor Craig Presgrave                                                        A/Professor Mohamed Shaffi                     
34 Hawkesbury Valley Way                                                  Suite 202, Level 2
Windsor NSW 2756                                                                64-68 Derby street Kingswood
Tel: (02)  9793 9200                                                              NSW 2747. Tel:(02) 4737 3400


A/Prof John Carmody (New Practice)                                                                                                                                                                    Plexus Neurology                                                                                                                                                                                                      2/28 Mercury Street,                                                                                                                                                                                    Wollongong NSW 2500                                                                                                                                                                                                                           Phone: 02 4201 0531 Fax: 02 4210 7392                                                                                                                                                                                                                                                                              


                                                                                                                                                                                                                        Neurology Clinic Wollongong Hospital                                                                                                                                                   Level 4, Block C                                                                                                                                                                  Wollongong Public Hospital                                                                                                                                                                          Tel: (02) 4253 4430    Fax: (02) 4253 4436                                                              


NSW Neurologist (continued)


Click the links below to access neurologists with a special interest in movement disorders for other state:


ACT. Neurologist

QLD. Neurologist 1

Vic. Neurologist.

 SA Neurologist

WA Neurologist           




      Dystonia Network of Australia Inc.(DNA) is the National Peak Body for All Types of Dystonia.    

Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.

We are registered with the Centre for Community – Driven Research  (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

ICD  Classification lnternational  Statistical  Classification  of  Diseases and  Related Health Problems 
(lCD),  a  medical classification list by the World  Health Organisation (WHO). lt contains codes for  diseases,  signs  and symptoms,  abnormal  findings,  complaints,  social circumstances,  and external  causes  of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.

Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No: CNF/23669  with     deductible gift recipient  (DGR)  status 2014