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ADVISORY BOARD APPROVED BROCHURES
PROVIDED & WRITTEN BY DNA Inc.
Australian Dystonia Awareness Week 5th – 12th September 2020 Incl.
Dystonia Network of Australia Inc. (DNA) is pleased to announce The Australian Dystonia Awareness Week on the Government Calendar for 2020 is 5th – 12th September inclusive. We are indebted to Grainger films who decided to professionally produce the dystonia awareness radio ad for us pro-bono. Stay tuned to our press release and news stories pages on our web site for updates. For more information you can also email us mailto:info@dystonia.org.au
Australian Dystonia Awareness Week 2020 The Hills Radio Interview Adelaide
Adelaide Hills Radio as well as some other country radio stations have been running our ad for dystonia awareness week. Chris Carpenter, General Manager of Adelaide Hills Radio, interviewed Kerrie & I last Thursday 3rd September 2020 about Dystonia and DNA. We won’t be giving up our day jobs any time soon but it went pretty well except for a couple of audio glitches.
With Permission of The Hills Radio Adelaide.
DNA Australian Dystonia Awareness Week 0.30 sec. Radio Ad
9/9/19
ABC Health Report on Dystonia
Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Associate Professor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link: https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220
With Permission of James Bullen
Producer, Health Report, ABC Radio National Sydney, Australia
Australian Movement Disorder Specialists
A visit to your neurologist should be a positive experience where information is exchanged and treatment options are considered in a collaborative way. It is best if questions are written down prior to the consultation so that you do not forget the issues that are important to you and also that you give the doctor any information that may impact on your future treatment.
A neurologist with a special interest in movement disorders will be able to give you the benefit of their experience in treating other patients with dystonia, but keep in mind that everyone is an individual and treatment that is beneficial for some patients does not necessarily suit all patients with the same diagnosis.
Many people find that taking a family member or friend along to the consultation may help in recalling the information discussed. It is important that your General Practitioner is kept in the loop so that he/she can take care of you between visits to the Neurologist.
NSW Neurologist
Doctor Florence Chang A/Professor Victor Fung
Department of Neurology Specialist Medical Centre
Westmead Hospital 151-155 Hawkesbury Road
Westmead NSW 2145 Westmead NSW 2145 Hosp.Tel:02 8890 6793 or Tel: (02) 9633 4999 Private Rooms (02) 9633 4999 Fax: (02) 9893 7524
Doctor Neil Mahant A/Professor Stephen Tisch
Suite 3 Suite 703
Westmead Private Hospital St Vincent’s Clinic
Darcy Road 438 Victoria Street
Westmead NSW 2145 Darlinghurst NSW 2010
Tel: 02 9687 0900 Tel: 02 8382 6715
Doctor Shekeeb Mohammad A/Professor Russell Dale
(Paediatric) Neurologist (Paediatric) Dept. of Neurology
Westmead Medical Centre Westmead Children’s Hospital
Suite 9, level 1 Hainsworth St. Hawkesbury Road Westmead
Westmead NSW 2145 NSW 2145 Tel: 02 9845 2657
Tel: 02 9689 2282 Referral from paediatrician required
A/Professor Karl Ng Doctor Kishore Kumar
Sydney North Neurology & Neurophysiology Sydney North Neurology & Neurophysiology Suite C1 / 210 Willoughby Rd Suite C1 / 210 Willoughby Rd
Naremburn NSW 2065 Naremburn NSW 2065
Tel: (02) 8287 1900 Tel: (02) 8287 1900
Doctor Craig Presgrave A/Professor Mohamed Shaffi
34 Hawkesbury Valley Way Suite 202, Level 2
Windsor NSW 2756 64-68 Derby street Kingswood
Tel: (02) 9793 9200 NSW 2747. Tel:(02) 4737 3400
A/Prof John Carmody (New Practice) Plexus Neurology 2/28 Mercury Street, Wollongong NSW 2500 Phone: 02 4201 0531 Fax: 02 4210 7392 Email:plexusneurology@gmail.com Website:www.plexusneurology.com
Neurology Clinic Wollongong Hospital Level 4, Block C Wollongong Public Hospital Tel: (02) 4253 4430 Fax: (02) 4253 4436
NSW Neurologist (continued)
Click the links below to access neurologists with a special interest in movement disorders for other state:
Vic. Neurologist_
ACT. Neurologist
QLD. Neurologist
SA Neurologist
WA. Neurologist
TAS Neurologist
Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.
https://www.healthdirect.gov.au/australian-health-services/23030054/dystonia-network-of-australia/services/leura-2780-denman
Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector. https://www.cc-dr.org/networks/apon/ & https://www.cc-dr.org/networks/apon/aponmembers/
We are registered with the Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)
Registered Charity ABN: 66 348 949 649 and Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014 and a Medical and multidisciplinary Advisory Board
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