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ADVISORY BOARD APPROVED BROCHURES  
PROVIDED & WRITTEN BY DNA Inc.
                                                                                                                                                                                                                                   

Australian Dystonia Awareness Week  5th – 12th September 2020 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce   The Australian Dystonia Awareness Week on the Government Calendar for 2020 is 5th – 12th September inclusive. We are indebted to Grainger films who decided to professionally  produce the dystonia awareness radio ad for us pro-bono.  Stay tuned to our press release  and news stories pages on our web site for updates. For more information you can also email us  mailto:info@dystonia.org.au

 

 

 

DNA Dystonia 0.30 sec.  Radio Ad

9/9/19

ABC Health Report on Dystonia

Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Associate Professor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link: https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220

With Permission of                                                                                                                                                                                                                          James Bullen
Producer, Health Report,                                                                                                                                                                                                                                                                       ABC Radio National  Sydney, Australia

                

Australian Movement Disorder Specialists

A visit to your neurologist should be a positive experience where information is exchanged and treatment options are considered in a collaborative way. It is best if questions are written down prior to the consultation so that you do not forget the issues that are important to you and also that you give the doctor any information that may impact on your future treatment.

A neurologist with a special interest in movement disorders will be able to give you the benefit of their experience in treating other patients with dystonia, but keep in mind that everyone is an individual and treatment that is beneficial for some patients does not necessarily suit all patients with the same diagnosis.

Many people find that taking a family member or friend along to the consultation may help in recalling the information discussed. It is important that your General Practitioner is kept in the loop so that he/she can take care of you between visits to the Neurologist.

NSW Neurologist

Doctor Florence Chang                                                       A/Professor Victor Fung
Department of Neurology                                                   Specialist Medical Centre
Westmead Hospital                                                             151-155 Hawkesbury Road
Westmead NSW 2145                                                         Westmead NSW 2145   Hosp.Tel:02 8890 6793 or                                                 Tel: (02) 9633 4999 Private Rooms  (02) 9633 4999                                        Fax: (02) 9893 7524

 

Doctor Neil Mahant                                                            A/Professor  Stephen Tisch
Suite 3                                                                                    Suite 703
Westmead  Private Hospital                                              St Vincent’s Clinic
Darcy Road                                                                            438 Victoria Street
Westmead NSW 2145                                                         Darlinghurst NSW 2010
Tel: 02 9687 0900                                                                Tel: 02 8382 6715

 

Doctor Shekeeb Mohammad                                              A/Professor Russell Dale
(Paediatric) Neurologist                                                       (Paediatric) Dept. of Neurology
Westmead Medical Centre                                                  Westmead Children’s Hospital
Suite 9, level 1  Hainsworth St.                                           Hawkesbury Road Westmead
Westmead NSW 2145                                                          NSW 2145  Tel: 02 9845 2657
Tel:  02 9689 2282                                                                Referral from paediatrician required

 

A/Professor Karl Ng                                                             Doctor Kishore Kumar
Sydney North Neurology & Neurophysiology                   Sydney North Neurology & Neurophysiology                                              Suite C1 / 210 Willoughby Rd                                             Suite C1  /  210 Willoughby Rd
Naremburn NSW 2065                                                         Naremburn NSW 2065
Tel: (02) 8287 1900                                                              Tel: (02) 8287 1900

 

Doctor Craig Presgrave                                                        A/Professor Mohamed Shaffi                     
34 Hawkesbury Valley Way                                                  Suite 202, Level 2
Windsor NSW 2756                                                                64-68 Derby street Kingswood
Tel: (02)  9793 9200                                                              NSW 2747. Tel:(02) 4737 3400

 

A/Prof John Carmody (New Practice)                                                                                                                                                                    Plexus Neurology                                                                                                                                                                                                      2/28 Mercury Street,                                                                                                                                                                                    Wollongong NSW 2500                                                                                                                                                                                                                           Phone: 02 4201 0531 Fax: 02 4210 7392                                                                                                                                           Email:plexusneurology@gmail.com                                                                                                                                                       Website:www.plexusneurology.com

                                                                                                                                                                                                                        Neurology Clinic Wollongong Hospital                                                                                                                                                                 Level 4, Block C                                                                                                                                                                  Wollongong Public Hospital                                                                                                                                                                           Tel: (02) 4253 4430    Fax: (02) 4253 4436

 

NSW Neurologist (continued)

 

Click the links below to access neurologists with a special interest in movement disorders for other state:

ACT. Neurologist

QLD. Neurologist

Vic. Neurologist.

 SA Neurologist

WA Neurologist           

                              

                       

Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia. 

 https://www.healthdirect.gov.au/australian-health-services/23030054/dystonia-network-of-australia/services/leura-2780-denman  

Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.   https://www.cc-dr.org/networks/apon/   &   https://www.cc-dr.org/networks/apon/aponmembers/

We are registered with the Centre for Community – Driven Research  (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

ICD  Classification lnternational  Statistical  Classification  of  Diseases and  Related Health Problems 
(lCD),  a  medical classification list by the World  Health Organisation (WHO). lt contains codes for  diseases,  signs  and symptoms,  abnormal  findings,  complaints,  social circumstances,  and external  causes  of injury or diseases.
Vl Disease of the nervous system.
G20-G26 Extrapyramidal and movement disorders
G24 Dystonia.

Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No: CNF/23669  with     deductible gift recipient  (DGR)  status 2014 and a Medical and multidisciplinary Advisory Board 

 

 

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