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                                                                                                           ADVISORY BOARD APPROVED BROCHURES

Australian Dystonia Awareness Week  7th – 14th September 2019 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release  and  news stories  pages on our web site for updates. For more information about Dystonia go to  or email us on 


Service Providers: Links of other organisations that you might need:

Chronic Pain Australia

                                                                                                                                                                                                                                                                                                                   Kerrie Jackson:                                                                                                                                                                                                                                                                             Health Consumer Representative,                                                                                                                                                                                                                                    Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


 Assessing Fitness to DriveAustroads



Medicare Services




Australian Healthcare and Hospitals Association

Australian Healthcare and Hospitals Association (AHHA):

Healthcare in Brief: May 3: High noon at the National Press Club; Latest AHHA Podcast covers…the Federal Election; And in other news…
Healthcare in Brief: April 26: At elections both sides play Santa not Mr/Ms Fixit; And in other news …


30 March Newsletter: Delivering the NDIS; Getting younger people out of aged care homes; From big things little things grow; SDA Reference Group members announced; Hugo inspiring a generation of change; Australia’s disability policy – help provide feedback; Victoria’s cafe career; Last chance to provide WA Market Review feedback; The power of a scooter.
6 April Newsletter: Jonas enjoys the winners podium; Pricing means more choice and control; Ben’s new lease on life.
Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                               Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN



Carer Supports and Services     CALL:  1800 242 636




Health consumer news and views.         Newsletter from Health Consumers NSW


Click here to download Healthy Cover: a consumers’ guide to the private health insurance changes

1 April 2019, private health insurance begins the most extensive changes in recent years. The Consumers Health Forum of Australia has compiled Healthy Cover, a guide that aims to provide an easy-to-understand overview of the changes and point you to more detailed information.

The Consumers Health Forum has compiled the following:                                                                                                                             5 questions to guide your health insurance choice


The Consumers Health Forum is holding a series of 6 webinars that covers the key information people need to understand about the benefits and risks of My Health Record in the context of their own lives. The recording of the first webinar on privacy, security and My Health Record is available at

My Health Record changes positive step for consumers: 1 August 2018  Media release.

CHF support stronger protection for patient records: 27 July 2018 — Media release.   

My Health Record moving to an opt-out model is the most important digital health change for consumers in Australia in 2018. To help people make an informed and considered decision about whether or not to opt-out of having a record created for them, CHF is holding a series of six webinars, starting next week, that will cover the key information people need to understand the benefits and risks of My Health Record in the context of their own lives. Find out more about the entire series.

Consumers Health Forum of Australia (CHF):
My Health Record: The recording of the fourth webinar in our My Health Record series that looks at the risks is now available for viewing. You can find it on our Youtube channel or directly at this link:
Media Release: Value of showing where too much treatment is too bad;
Health Consumers NSW (HCNSW):
Health Consumers NSW! (HCNSW):
The Wrap: May 2019: Patient Experience Symposium 2019 It’s a wrap; 10 self-care tips for health consumer representatives; Annette on chronic care network executive committee; 2019 date: two-day health consumer representative training in Sydney CBD; People with severe mental illness left behind in NDIS transition; Patient safety put at risk by negative workplace cultures; Indigenous health and ‘the gap’ would be better served by focusing on positives, not negatives. Have Your Say: Networking summit; Board Director Position; consumer Representative Opportunity, Working Group; Survey, National Opportunities.
Consumers Health Forum of Australia (CHF): “The consumers’ role in the health system is assuming new power that is giving them more influence and choice, as we have stated in our white paper, Shifting Gears – Consumers Transforming Health which was released this week; My Health Record takes a vital step forward (media release).

Consumers Health Forum of Australia:  –  

State Peak Health Consumer Organisations:

ACT: Health Care Consumers’ Association of the ACT (HCCA)

QLD: Health Consumers Queensland (HCQ)

NSW: Health Consumers NSW (HCNSW)

SA: Health Consumers Alliance of SA (HCASA)

VIC: Health Issues Centre (HIC)

WA: Health Consumers’ Council

DNA member of The Consumers Health Forum of Australia

Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                              Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN




Neurological Council of Western Australia (NCWA)

Nursing Consultation Service – Freecall 1800 645 771



House Call Doctor:  Is a Queensland GP after hours service                                                      Call:  13 55 66





National Home Doctor Service: Ph: 13 7425               HealthCall At Home  1300 363 898                                                                                                                                                        

National-Home-Doctor-Service                                                                  NURSING & SUPPORT SERVICES

HealthCall At Home Nursing & Support Services




   My Health Record Facts Sheets: Help Line on 1800 723 471  or go to:





Commonwealth Ombudsman The NDIS Complaints Departments for all States Ph: 1300 362 072 



National Disability Insurance Agency CEO quits to lead privately owned service provider
National Disability Insurance Agency chief executive Robert De Luca has suddenly resigned with immediate effect, leaving it up to the next federal government to appoint a successor.

  • NDIS:
    Update: Sep 2018: Self-management webinar video is available; your guide to the NDIS; September roll out to more areas in Victoria; Pathway improvements; Dale’s advice “never give up”; NDIS Q&A.




National Disability Insurance Agency:

You can access information on the National Disability Insurance Scheme for all States by calling: 1800 800 110  or at

NDIS: Update: 22 Aug: Quarterly Report: Quarter 4 17/18; Improvements to Assistive Technology; Sean’s grass is greener with the NDIS; Autism Advisory Group; myplace improvements; More inclusive remote communities; the weekly Q&A.

NDIS: NDIS: Update 23 July 2018

Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                            Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


The Disability Trust:

  “ Your Voice, Your Choice aims to provide the questions, and hopefully most of the answers, that will keep you informed and able to use your voice to achieve your choice.  If  there is a topic, article, event, or anything for people with disabilities, their families and carers, and people working in the sector, that we should know about, then contact us at                            Editor: Sean O’Neill. 

Exert From The Disability Trust Newsletter October 2016.                                                                                                                                                                                                                                                                                                                                       

The Disability Trust Contact Details: 100-102   Jardine St. Fairy Meadow NSW Australia 2519.        Ph: (02) 4295 9806  /  Fax: (02) 4255 8088    Website:  or   Newsletter Editor:    

A Big Thank You to The Disability Trust for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the October 2016 issue of:       Your Voice Your Choice Newsletter.


The Disability Trust

 Download the Newsletter PDF





Vision Australia Ph:  1300 84 74 66   or


Vision Australia

Vision Australia


TabTimer  helps keep medications on time                    

Do you need a Medication Reminder try TabTimer

Do you need a Medication Reminder try TabTimer

Jonathan Allott:  Ph: 1300 822 846  F: 1300 883 749 









Respite Choices Macarthur:

NDIS Approved.

Unit 7 / 100 Argyle St. Camden NSW 2570.  Ph: (02) 4655 6242  F: (02) 4655 6243

Email:  Website:





Pathway Summer 2017 complete_1

PATHWAY         Pathway Summer 2016 


A Big Thank You to PATH Inc. for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the November 2016 issue of  the Pathway Newsletter.