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                                                                                                           ADVISORY BOARD APPROVED BROCHURES

Australian Dystonia Awareness Week  14 – 21 September


Dystonia Network of Australia Inc. (DNA) is proud to announce that we have secured the 14 – 21 September inclusive for the Australian Dystonia Awareness Week on the National Australia government calendar. We hope that all who suffer from dystonia, Dystonia Organisations, groups and interested parties take advantage of this week and put your thinking caps on and think of how you might celebrate Dystonia Awareness. Stay tuned to our press release and news pages on our web site for updates. For more information about Dystonia go to   or email us on


Service Providers: Links of other organisations that you might need:

Chronic Pain Australia

                                                                                                                                                                                                                                                                                                                   Kerrie Jackson:                                                                                                                                                                                                                                                                             Health Consumer Representative,                                                                                                                                                                                                                                    Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


 Assessing Fitness to DriveAustroads



Medicare Services




Australian Healthcare and Hospitals Association

The latest news from NBMPHN CEO – Lizz Reay #CEOdesk.
                                                                                                                                                                                                                                      Australian Healthcare and Hospitals Association (AHHA): 
Healthcare in Brief: 1 Nov: Healthcare bullying revelations multiplying; Peer review, national interest test-or pub test?
Healthcare in Brief: 6 Nov: Betteridge’s law of headlines; Form guide to the rest of HiB today.
Healthcare in Brief: 8 Nov: More on My HR (our Minister says no more extensions. After 15 Nov a My HR will be created for people if they haven’t opted out, but they can opt out any time, before, on, or after 15 November); Up the humanities!; Yes to peanut butter.
NDIS: Update 2 Oct: Major milestone as NDIS marks 200,000; Joffa’s leading the way for inclusive football; October roll out; New Darwin office opened; Ben is baking with purpose; WA NDIS Q&A.                                                                                                                                                                                                  


Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                               Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN



Carer Supports and Services     CALL:  1800 242 636




Health consumer news and views.         Newsletter from Health Consumers NSW

Consumers Health Forum of Australia (CHF): The Consumers Health Forum is holding a series of 6 webinars that covers the key information people need to understand about the benefits and risks of My Health Record in the context of their own lives. The recording of the first webinar on privacy, security and My Health Record is available at

My Health Record changes positive step for consumers: 1 August 2018  Media release.

CHF support stronger protection for patient records: 27 July 2018 — Media release.   

My Health Record moving to an opt-out model is the most important digital health change for consumers in Australia in 2018. To help people make an informed and considered decision about whether or not to opt-out of having a record created for them, CHF is holding a series of six webinars, starting next week, that will cover the key information people need to understand the benefits and risks of My Health Record in the context of their own lives. Find out more about the entire series.

Consumers Health Forum of Australia (CHF):
My Health Record: The recording of the fourth webinar in our My Health Record series that looks at the risks is now available for viewing. You can find it on our Youtube channel or directly at this link:
HealthUPdate: Sep: Monthly mailing for members and consumer reps, brings you the latest news (community round table with Health Minister, Greg Hunt), policy updates (e.g. private health insurance digital health), consultations and consumer representative opportunities.
Media Release: Helping patients to help themselves is good for the health economy: In its Future of Health report, the CSIRO put “empowering consumers” as its number one point in shifting Australia’s focus from illness treatment to health and wellbeing management.


The Wrap: Sep 2018: Opting out or not of MHR (you now have until 15 November 2018 to make a decision).
Parramatta Information Forum: Benefits and risks of MHR. Positive Life NSW and the Australian Digital Health Agency are jointly hosting a second information forum for health consumers, people living with a chronic health diagnoses and staff from NGO services about the My Health Record (MyHR). When: Wed 7 November Time: 9am-1pm (8.30am arrival). Where: The Novotel Parramatta. Registrations here.

Consumers Health Forum of Australia:  –  

State Peak Health Consumer Organisations:

ACT: Health Care Consumers’ Association of the ACT (HCCA)

QLD: Health Consumers Queensland (HCQ)

NSW: Health Consumers NSW (HCNSW)

SA: Health Consumers Alliance of SA (HCASA)

VIC: Health Issues Centre (HIC)

WA: Health Consumers’ Council

Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                              Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN




Neurological Council of Western Australia (NCWA)

Nursing Consultation Service – Freecall 1800 645 771



House Call Doctor:  Is a Queensland GP after hours service                                                      Call:  13 55 66





National Home Doctor Service: Ph: 13 7425               HealthCall At Home  1300 363 898                                                                                                                                                        

National-Home-Doctor-Service                                                                  NURSING & SUPPORT SERVICES

HealthCall At Home Nursing & Support Services




   My Health Record Facts Sheets: Help Line on 1800 723 471  or go to:





Commonwealth Ombudsman The NDIS Complaints Departments for all States Ph: 1300 362 072 


  • NDIS:
    Update: Sep 2018: Self-management webinar video is available; your guide to the NDIS; September roll out to more areas in Victoria; Pathway improvements; Dale’s advice “never give up”; NDIS Q&A.




National Disability Insurance Agency:

You can access information on the National Disability Insurance Scheme for all States by calling: 1800 800 110  or at

NDIS: Update: 22 Aug: Quarterly Report: Quarter 4 17/18; Improvements to Assistive Technology; Sean’s grass is greener with the NDIS; Autism Advisory Group; myplace improvements; More inclusive remote communities; the weekly Q&A.

NDIS: NDIS: Update 23 July 2018

Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                            Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


The Disability Trust:

  “ Your Voice, Your Choice aims to provide the questions, and hopefully most of the answers, that will keep you informed and able to use your voice to achieve your choice.  If  there is a topic, article, event, or anything for people with disabilities, their families and carers, and people working in the sector, that we should know about, then contact us at                            Editor: Sean O’Neill. 

Exert From The Disability Trust Newsletter October 2016.                                                                                                                                                                                                                                                                                                                                       

The Disability Trust Contact Details: 100-102   Jardine St. Fairy Meadow NSW Australia 2519.        Ph: (02) 4295 9806  /  Fax: (02) 4255 8088    Website:  or   Newsletter Editor:    

A Big Thank You to The Disability Trust for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the October 2016 issue of:       Your Voice Your Choice Newsletter.


The Disability Trust

 Download the Newsletter PDF





Vision Australia Ph:  1300 84 74 66   or


Vision Australia

Vision Australia


TabTimer  helps keep medications on time                    

Do you need a Medication Reminder try TabTimer

Do you need a Medication Reminder try TabTimer

Jonathan Allott:  Ph: 1300 822 846  F: 1300 883 749 









Respite Choices Macarthur:

NDIS Approved.

Unit 7 / 100 Argyle St. Camden NSW 2570.  Ph: (02) 4655 6242  F: (02) 4655 6243

Email:  Website:





Pathway Summer 2017 complete_1

PATHWAY         Pathway Summer 2016 


A Big Thank You to PATH Inc. for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the November 2016 issue of  the Pathway Newsletter.