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ADVISORY BOARD APPROVED BROCHURES
Australian Dystonia Awareness Week 7th – 14th September 2019 Incl.
Dystonia Network of Australia Inc. (DNA) is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release and news stories pages on our web site for updates. For more information about Dystonia go to dystonia.org.au or email us on info@dystonia.org.au
Service Providers: Links of other organisations that you might need:
Chronic Pain Australia
- Check out the website for patient stories and events happening on awareness week.
- APMA – Australian Pain Management Assoc.
Kerrie Jackson: Health Consumer Representative, Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN
Assessing Fitness to Drive – Austroads
www.austroads.com.au/drivers-vehicles/assessing-fitness-to-drive
Medicare Services
https://www.humanservices.gov.au/customer/subjects/medicare-services
Australian Healthcare and Hospitals Association
Australian Healthcare and Hospitals Association (AHHA):
AHHA health policy assessment released- ‘it is about moving towards results that matter to patients’; What else have you got for me?
NDIS:
Kerrie Jackson Health Consumer Representative, Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN
Carer Supports and Services CALL: 1800 242 636
http://www.carersaustralia.com.au/
Health consumer news and views. Newsletter from Health Consumers NSW
Click here to download Healthy Cover: a consumers’ guide to the private health insurance changes
1 April 2019, private health insurance begins the most extensive changes in recent years. The Consumers Health Forum of Australia has compiled Healthy Cover, a guide that aims to provide an easy-to-understand overview of the changes and point you to more detailed information.
The Consumers Health Forum has compiled the following: 5 questions to guide your health insurance choice
The Consumers Health Forum is holding a series of 6 webinars that covers the key information people need to understand about the benefits and risks of My Health Record in the context of their own lives. The recording of the first webinar on privacy, security and My Health Record is available at https://www.youtube.com/watch?v=5yhx4WZP6EM
My Health Record changes positive step for consumers: 1 August 2018 — Media release.
CHF support stronger protection for patient records: 27 July 2018 — Media release.
My Health Record moving to an opt-out model is the most important digital health change for consumers in Australia in 2018. To help people make an informed and considered decision about whether or not to opt-out of having a record created for them, CHF is holding a series of six webinars, starting next week, that will cover the key information people need to understand the benefits and risks of My Health Record in the context of their own lives. Find out more about the entire series.
Consumers Health Forum of Australia: – https://chf.org.au/
State Peak Health Consumer Organisations:
ACT: Health Care Consumers’ Association of the ACT (HCCA) – http://www.hcca.org.au
QLD: Health Consumers Queensland (HCQ) – http://hcq.org.au/
NSW: Health Consumers NSW (HCNSW) – http://www.hcnsw.org.au/
SA: Health Consumers Alliance of SA (HCASA) – http://www.hcasa.asn.au/
VIC: Health Issues Centre (HIC) – http://www.healthissuescentre.org.au/
WA: Health Consumers’ Council – http://www.hconc.org.au/
DNA member of The Consumers Health Forum of Australia
Kerrie Jackson Health Consumer Representative, Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN
Western Australia
Neurological Council of Western Australia (NCWA)
Nursing Consultation Service – Freecall 1800 645 771
Victoria
ring NURSE-ON-CALL Tel. 1300 60 60 24 for expert health advice from a registered nurse 24 hours a day, 7 days a week (for the cost of a local call from anywhere in Victoria – calls from mobile phones may be charged at a higher rate).
House Call Doctor: Is a Queensland GP after hours service Call: 13 55 66
www.housecalldoctor.com.au
National Home Doctor Service: Ph: 13 7425 HealthCall At Home 1300 363 898 www.healthcall.com.au
NURSING & SUPPORT SERVICES
My Health Record Facts Sheets: Help Line on 1800 723 471 or go to: www.myhealthrecord.gov.au
Commonwealth Ombudsman The NDIS Complaints Departments for all States Ph: 1300 362 072 www.ombudsman.gov.au
NDIS
NDIS
National Disability Insurance Agency CEO quits to lead privately owned service provider
National Disability Insurance Agency chief executive Robert De Luca has suddenly resigned with immediate effect, leaving it up to the next federal government to appoint a successor.
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NDIS:Update: Sep 2018: Self-management webinar video is available; your guide to the NDIS; September roll out to more areas in Victoria; Pathway improvements; Dale’s advice “never give up”; NDIS Q&A.
National Disability Insurance Agency:
You can access information on the National Disability Insurance Scheme for all States by calling: 1800 800 110 or at www.ndis.gov.au
NDIS: Update: 22 Aug: Quarterly Report: Quarter 4 17/18; Improvements to Assistive Technology; Sean’s grass is greener with the NDIS; Autism Advisory Group; myplace improvements; More inclusive remote communities; the weekly Q&A.
NDIS: NDIS: Update 23 July: 2018
The Disability Trust:
“ Your Voice, Your Choice“ aims to provide the questions, and hopefully most of the answers, that will keep you informed and able to use your voice to achieve your choice. If there is a topic, article, event, or anything for people with disabilities, their families and carers, and people working in the sector, that we should know about, then contact us at info@disabilitytrust.org.au Editor: Sean O’Neill.
Exert From The Disability Trust Newsletter October 2016.
The Disability Trust Contact Details: 100-102 Jardine St. Fairy Meadow NSW Australia 2519. Ph: (02) 4295 9806 / Fax: (02) 4255 8088 Website: www.disabilitytrust.org.au or info@disabilitytrust.org.au Newsletter Editor: sean@disabilitytrust.org.au
A Big Thank You to The Disability Trust for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the October 2016 issue of: Your Voice Your Choice Newsletter.
http://www.disabilitytrust.org.au/about/newsletters
Vision Australia Ph: 1300 84 74 66 or www.visionaustralia.org
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Jonathan Allott: Ph: 1300 822 846 F: 1300 883 749
Email: info@tabtimer.com.au
Website: www.tabtimer.com.au
Respite Choices Macarthur:
NDIS Approved.
Unit 7 / 100 Argyle St. Camden NSW 2570. Ph: (02) 4655 6242 F: (02) 4655 6243
Email: service@macarthurrespitecare.com.au Website: http://macarthurrespitecare.com.au
Website: https://www.facebook.com/macarthurrespitechoices/?fref=nf
Pathway Summer 2017 complete_1
PATHWAY Pathway Summer 2016
THE NEWSLETTER OF THE PENRITH ASSOCIATION FOR PEOPLE WITH DISABILITIES, THEIR CARERS, FAMILIES AND FRIENDS
A Big Thank You to PATH Inc. for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the November 2016 issue of the Pathway Newsletter.