You have reached a section that is a work in progress. If you have any suggestions or contributions for this category please contact us at DNA.

                                                                                                           ADVISORY BOARD APPROVED BROCHURES

      Australian Dystonia Awareness Week  7th – 14th September 2019 Incl.


Dystonia Network of Australia Inc. (DNA)  is pleased to announce Australia’s Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. We are indebted to Grainger films who decided to professionally  produce the dystonia awareness radio ad pro-bono which is now out at radio stations across Australia via Livermore Media. Please let us know if you hear it. We have our awareness days as follows: Royal North Shore Hospital Sydney: Monday 2nd September 2019 in the Main Foyer from 10am – 5pm.  St Vincent’s Hospital Sydney: Wednesday 11th September 2019 on the Mezzanine level from 10am – 5pm. We have chosen these dates to cover the Movement disorder or Botulinum Toxin clinics. If you live nearby come and chat to us or spend some time assisting at the booths. For more information please email us. The GP Education dates, we will have a booth, at Sydney – Saturday 24th August 2019 and Adelaide – 14th September 2019.  Also let us know if you want to do something special to celebrate Dystonia Awareness Week. We are happy to support you. Stay tuned to our  press release  and  news stories  pages on our web site for updates. For more information you can email us


DNA Dystonia 0.30 sec.  Radio Ad



Service Providers: Links of other organisations that you might need:

Chronic Pain Australia

                                                                                                                                                                                                                                                                                                                   Kerrie Jackson:                                                                                                                                                                                                                                                                             Health Consumer Representative,                                                                                                                                                                                                                                    Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


 Assessing Fitness to DriveAustroads



Medicare Services




Australian Healthcare and Hospitals Association

Australian Healthcare and Hospitals Association (AHHA):

We invite you to stay up-to-date with the latest news and views from our CEO, Lizz Reay: Blog, Twitter, PHN Facebook, Events.


Healthcare in Brief: 14 June: Editorial; Value in health the talk of the town.
Healthcare in Brief: 21 June: Victoria’s new voluntary assisted drying laws-more than meets the eye; Offensive conjecture is not journalism
       Healthcare in Brief: 7 June: Shaking up value-based health care; In other news…;               

AHHA health policy assessment released- ‘it is about moving towards results that matter to patients’; What else have you got for me?


Western Sydney Community Forum:
May Issue: News Digest; The Home in Western Sydney report has been launched; National Volunteer Week; Aged Care Navigators; Mental Health co-ordinating Council – re-imagining the NDIS journey; Blue Mountains City Council Disability Study; Consultation on Cert III in Ageing Support Qualification; Minimising physical and chemical restraint in residential aged care; NDCO Webinar: Get the right tools for employment success; Have Your Say; Gilimbaa; 2019 Penrith Volunteer Showcase; Western Sydney / Nepean Regional Managers’ Community Care Forum.
Newsletter June 2019: Assistive Technology Webinar; New Minister stops by; Receipt numbers from Call Centre; NDISTV – Ariana steps into graduation; Three useful booklets: 1) Understanding the NDIS, 2) Planning, and 3) Using your NDIS Plan; Web Story – MS, mateship and the NDIS; NDISTV – Sue’s taking control; Language Interpreting Services; NDISTV – Brad’s ANZAC Day parade.


Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                               Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN



Carer Supports and Services     CALL:  1800 242 636




Health consumer news and views.         Newsletter from Health Consumers NSW


Click here to download Healthy Cover: a consumers’ guide to the private health insurance changes

1 April 2019, private health insurance begins the most extensive changes in recent years. The Consumers Health Forum of Australia has compiled Healthy Cover, a guide that aims to provide an easy-to-understand overview of the changes and point you to more detailed information.

The Consumers Health Forum has compiled the following:                                                                                                                             5 questions to guide your health insurance choice


The Consumers Health Forum is holding a series of 6 webinars that covers the key information people need to understand about the benefits and risks of My Health Record in the context of their own lives. The recording of the first webinar on privacy, security and My Health Record is available at

My Health Record changes positive step for consumers: 1 August 2018  Media release.

CHF support stronger protection for patient records: 27 July 2018 — Media release.   

My Health Record moving to an opt-out model is the most important digital health change for consumers in Australia in 2018. To help people make an informed and considered decision about whether or not to opt-out of having a record created for them, CHF is holding a series of six webinars, starting next week, that will cover the key information people need to understand the benefits and risks of My Health Record in the context of their own lives. Find out more about the entire series.

Consumers Health Forum of Australia (CHF):
My Health Record: The recording of the fourth webinar in our My Health Record series that looks at the risks is now available for viewing. You can find it on our Youtube channel or directly at this link:
Media Release: Value of showing where too much treatment is too bad;
The Wrap July 2019: “Watching my family watch me was the hardest part” A word with Brad Rossiter. Our revised training suite, Consumer Representative Training; Personal and consumer stories; New and current affairs; What social media analytics can tell us about patient advocacy; Have Your Say; Surveys & Study Participation.
Consumers Health Forum of Australia (CHF): “The consumers’ role in the health system is assuming new power that is giving them more influence and choice, as we have stated in our white paper, Shifting Gears – Consumers Transforming Health which was released this week; My Health Record takes a vital step forward (media release).

Consumers Health Forum of Australia:  –  

State Peak Health Consumer Organisations:

ACT: Health Care Consumers’ Association of the ACT (HCCA)

QLD: Health Consumers Queensland (HCQ)

NSW: Health Consumers NSW (HCNSW)

SA: Health Consumers Alliance of SA (HCASA)

VIC: Health Issues Centre (HIC)

WA: Health Consumers’ Council

DNA member of The Consumers Health Forum of Australia

Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                              Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


Western Australia

Neurological Council of Western Australia (NCWA)

Nursing Consultation Service – Freecall 1800 645 771




ring NURSE-ON-CALL Tel. 1300 60 60 24 for expert health advice from a registered nurse 24 hours a day, 7 days a week (for the cost of a local call from anywhere in Victoria – calls from mobile phones may be charged at a higher rate).



House Call Doctor:  Is a Queensland GP after hours service                                                      Call:  13 55 66





National Home Doctor Service: Ph: 13 7425               HealthCall At Home  1300 363 898                                                                                                                                                        

National-Home-Doctor-Service                                                                  NURSING & SUPPORT SERVICES

HealthCall At Home Nursing & Support Services




   My Health Record Facts Sheets: Help Line on 1800 723 471  or go to:





Commonwealth Ombudsman The NDIS Complaints Departments for all States Ph: 1300 362 072 



National Disability Insurance Agency CEO quits to lead privately owned service provider
National Disability Insurance Agency chief executive Robert De Luca has suddenly resigned with immediate effect, leaving it up to the next federal government to appoint a successor.

  • NDIS:
    Update: Sep 2018: Self-management webinar video is available; your guide to the NDIS; September roll out to more areas in Victoria; Pathway improvements; Dale’s advice “never give up”; NDIS Q&A.




National Disability Insurance Agency:

You can access information on the National Disability Insurance Scheme for all States by calling: 1800 800 110  or at

NDIS: Update: 22 Aug: Quarterly Report: Quarter 4 17/18; Improvements to Assistive Technology; Sean’s grass is greener with the NDIS; Autism Advisory Group; myplace improvements; More inclusive remote communities; the weekly Q&A.

NDIS: NDIS: Update 23 July 2018

Kerrie Jackson  Health Consumer Representative,                                                                                                                                                                                                                                                                                            Wentworth Healthcare Ltd. (ABN 88 155 904 975) Provider of the Nepean Blue Mountains PHN


The Disability Trust:

  “ Your Voice, Your Choice aims to provide the questions, and hopefully most of the answers, that will keep you informed and able to use your voice to achieve your choice.  If  there is a topic, article, event, or anything for people with disabilities, their families and carers, and people working in the sector, that we should know about, then contact us at                            Editor: Sean O’Neill. 

Exert From The Disability Trust Newsletter October 2016.                                                                                                                                                                                                                                                                                                                                       

The Disability Trust Contact Details: 100-102   Jardine St. Fairy Meadow NSW Australia 2519.        Ph: (02) 4295 9806  /  Fax: (02) 4255 8088    Website:  or   Newsletter Editor:    

A Big Thank You to The Disability Trust for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the October 2016 issue of:       Your Voice Your Choice Newsletter.


The Disability Trust

 Download the Newsletter PDF





Vision Australia Ph:  1300 84 74 66   or


Vision Australia

Vision Australia


TabTimer  helps keep medications on time                    

Do you need a Medication Reminder try TabTimer

Do you need a Medication Reminder try TabTimer

Jonathan Allott:  Ph: 1300 822 846  F: 1300 883 749 









Respite Choices Macarthur:

NDIS Approved.

Unit 7 / 100 Argyle St. Camden NSW 2570.  Ph: (02) 4655 6242  F: (02) 4655 6243

Email:  Website:





Pathway Summer 2017 complete_1

PATHWAY         Pathway Summer 2016 


A Big Thank You to PATH Inc. for giving Dystonia Network of Australia Inc. the opportunity to advertise our Dystonia Awareness Notice in the November 2016 issue of  the Pathway Newsletter.