Physiotherapy in dystonia is complex and its effect depends on the type of dystonia being treated. For instance postural training and head control exercises can be helpful for people with cervical dystonia (neck dystonia). Other treatments such as massage and stretching do not suit everyone and might even worsen symptoms for a short time in some people, while others gain benefit. Physiotherapy cannot cure dystonia but it may work alongside other treatments such as botulinum toxin, provide relief and help you feel more in control of your symptoms. It is important to understand that muscles do not behave normally in dystonia so you should contact a physiotherapist who understands the condition or is willing to discuss your treatment with someone who is experienced to get the best effect.
Merz Pharmaceuticals has once again donated 100 translated copies of Jean-Pierre Bleton’s book for physiotherapists – Spasmodic Torticollis – A physiotherapy handbook –
If you would like a copy for your physio please contact DNA on firstname.lastname@example.org with your request and postal address. There is no cost for the book but there is a P&P fee of $8.00 You can pay this fee into Dystonia Network of Australia Inc’s bank account: BSB 062 601 Account number 1039 3686. Many thanks to Debbie Marques and Merz Pharmaceuticals for providing the books.
Physical Activity in Dystonia Research Survey is now live.
Dear members and sufferers of Dystonia would you please consider completing this survey link below which has been sent to us by Dr Alana McCambridge, PhD Lecturer UTS Sydney and Associate Professor Lynley Bradnam University of Auckland, New Zealand. Follow this link below to the Survey:
Or copy and paste the URL below into your internet browser:
With permission of Dr Alana McCambridge, PhD Lecturer UTS Sydney and Associate Professor Lynley Bradnam University of Auckland, New Zealand.