Our Aim:

To provide appropriate, researched information for adults and children with dystonia, their carers and interested health providers.                                                                                                                                                                                                                              To increase community awareness of the condition.                                                                                                                                  To  ultimately fund seminars and assist with research.

Can you run, sew or bake cakes for dystonia? If you would like to assist DNA with fundraising activities please contact us.                                                                                                                                                                                                                       Kerrie, Laraine & the DNA committee.


You can now create your own campaign through MyCause to raise money for the Dystonia Network of Australia Inc.

 DNA Banner July 2015 Kerrie & Laraine Co - Founders DNA Inc.

Kerrie & Laraine
Co – Founders DNA Inc. July  2015



 Australian Dystonia Awareness Week  20th – 27th September 2019 Inclusive

               Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 20th – 27th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release and news stories pages on our web site for updates. For more information about Dystonia go to dystonia.org.au or email us on info@dystonia.org.au 





DNA Benefit Night:

Inaugural Benefit Night at Terranova Bar & Restaurant

1647 The Horsely drive, Horsely Park NSW 2175

Thursday 28th April 2016

The Auction & Benefit Night on 28 April 2016 at Terranova Bar & Restaurant was a great suc-cess. Around 200 people attended, all with the intention of enjoying the atmosphere, the won-derful food and drinks and generously giving to a great cause. DNA cleared $16,000 from the event. Many Thanks to our hosts and also to those of our members who donated to the night and those who gave auction items.


We would like to acknowledge the people from DNA who donated to the success of the night in various ways:

Our thanks go to Marina McShannon, Phil Mangan, Leah Ding, Jacqui Sutton and Eric Williams. The main sponsors  for the evening will be posted  on the website soon.



Fundraising for 2015

1. Trivia Night, Springwood Country Club, Springwood, Blue Mountains, NSW  Saturday 25th July   Download Trivia Night Flyer

DNA Office Bearers,2015 Anne, Phil, Kerrie, Robyn & Laraine

DNA Office Bearers 2015,  Anne, Phil, Kerrie, Robyn & Laraine.


What a great night!! raising $3,500

What a great night!! making $3,500 after expenses.


DNA inaugural trivia fundraiser 2015

DNA inaugural trivia fundraiser 2015 with 100 family and friends attended the trivia night.

On behalf of myself, Laraine and the DNA committee, we wish to give our heartfelt thanks to everyone who supported us and took part in our Inaugural Dystonia Awareness Campaign and Fundraiser. We have been overwhelmed with everyone’s  generous donations of  money and prizes. It was an absolutely fantastic night with around 100 people attending the trivia night. It was really wonderful to see all of our families and friends gathering together to support Dystonia!! After all our expenses we raised the amazing amount of $3,500.00 which will go towards the reprinting of our brochures so we can start delivering them to all the Botox Clinics,  MDS Neurologists and Hospitals in Australia as well as providing new members with their packages.


2. City to Surf, August. It is a fantastic sunny day for the City2Surf I wish Laraine , Ann, Claire and Candy a Wonderful Day for our Dystonia Awareness and Fundraising see you at the end!!!!



Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No:  CNF / 23669.