Over the next few months we intend to build up a list of additional information sites to add to your dystonia knowledge. If you would like to name a site or service for our excellence award please contact DNA.

Australian Dystonia Awareness Week  7th – 14th September 2019 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release  and  news stories  pages on our web site for updates. For more information about Dystonia go to  dystonia.org.au  or email us on info@dystonia.org.au 



The dystonia society

http://www.dystonia.org.uk/         info@dystonia.org.uk






New Zealand Dystonia Patient Network  is holding its Annual Seminar on Sat. 16/6/18 in Auckland                            



                              Phillippa, Laraine, Jayne, Peggy, Alison & Kerrie                                                                

Strengthening the DNA & NZDPN Dystonia Alliance                      Strengthening the DNA & NZDPN Alliance at the DNA Seminar 2016  



Dear Member/Contact

We regret to announce that because of the current Covid-19 outbreak we have decided to cancel the Annual Seminar, which was to be held on 16 May in Wellington.  We are mindful of government and health advice to minimise social gatherings, and that we need to put the health of our community first.  Please find attached advice from the Ministry of Health.

We will still hold an AGM this coming winter, and will endeavour to do this in a way that provides for appropriate personal separation!  We will update you when arrangements are made.


NZ Dystonia Network


With permission of NZDPN






Dystonia Europe


29 /06 /19
Dear All, there is a livestream dystonia session that you may want to view on the link below

Dystonia Europe Broadcast from Norway 5 – 6.30pm Today Australian time


Monika, Kerrie and Laraine 2014

 Dystonia Europe – Newsletter

 "Jump For Dystonia" DNA Seminar August 2015

“Jump For Dystonia” Dystonia Network of Australia Inc. Seminar Aug. 2015