Australian Dystonia Awareness Week  7th – 14th September 2019 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive.  During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release  and  news stories  pages on our web site for updates. For more information about Dystonia go to  dystonia.org.au  or email us on info@dystonia.org.au 

                      Strengthening the DNA & NZDPN Alliance at the DNA Seminar 2016  

19/03/20         

Dear Member/Contact

We regret to announce that because of the current Covid-19 outbreak we have decided to cancel the Annual Seminar, which was to be held on 16 May in Wellington.  We are mindful of government and health advice to minimise social gatherings, and that we need to put the health of our community first.  Please find attached advice from the Ministry of Health.

We will still hold an AGM this coming winter, and will endeavour to do this in a way that provides for appropriate personal separation!  We will update you when arrangements are made.

Sincerely

NZ Dystonia Network

www.dystonia.org.nz

With permission of NZDPN

Dystonia Europe

 http://www.dystonia-europe.org 

 Dystonia Europe – Newsletter