Over the next few months we intend to build up a list of additional information sites to add to your dystonia knowledge. If you would like to name a site or service for our excellence award please contact DNA.
Australian Dystonia Awareness Week 7th – 14th September 2019 Incl.
Dystonia Network of Australia Inc. (DNA) is pleased to announce our Dystonia Awareness Week on the Government Calendar for 2019 is 7th – 14th September inclusive. During this week we hope to hold Dystonia Information Days in at least 2 Tertiary Hospitals in Sydney and host a phone-in forum with a movement disorder specialist. We have also been given the opportunity to boost community awareness by advertising DNA and explaining Dystonia in community media in the lead up to Awareness Week. We will keep you informed of any other activities. Hopefully some members will also consider holding events in other areas and states to mark this week. We are aware that other groups follow the American dystonia awareness which is the whole of September and we are happy to support any events for members during this extended time. Stay tuned to our press release and news stories pages on our web site for updates. For more information about Dystonia go to dystonia.org.au or email us on info@dystonia.org.au
The dystonia society
http://www.dystonia.org.uk/ info@dystonia.org.uk
New Zealand Dystonia Patient Network is holding its Annual Seminar on Sat. 16/6/18 in Auckland
http://www.dystonia.org.nz NZDPN Newsletter November 2018
Newsletter – April 2018
With permission of NZDPN
Phillippa, Laraine, Jayne, Peggy, Alison & Kerrie
Strengthening the DNA & NZDPN Alliance at the DNA Seminar 2016
Dystonia Europe
http://www.dystonia-europe.org
Monika, Kerrie and Laraine 2014
Dystonia Europe – Newsletter
“Jump For Dystonia” Dystonia Network of Australia Inc. Seminar Aug. 2015