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Physical Activity in Dystonia Research Survey is now live.
Dear members and sufferers of Dystonia would you please consider completing this survey link below which has been sent to us by Dr Alana McCambridge, PhD Lecturer UTS Sydney and Associate Professor Lynley Bradnam University of Auckland, New Zealand. Follow this link below to the Survey:
Or copy and paste the URL below into your internet browser:
With permission of Dr Alana McCambridge, PhD Lecturer UTS Sydney and Associate Professor Lynley Bradnam University of Auckland, New Zealand.
Dr. Florence Chang
Dear All, here is a research project from Doctor Florence Chang being carried out at Westmead Hospital.
With permission of Dr Florence Chang.
2018 Attention all with CD (cervical dystonia)
Melani Boyce, physiotherapist, Is calling for more people with CD (cervical dystonia) to be involved in a study at Westmead hospital. She is investigating the balance and function of people with CD and starting to look into falls in these people. Please click below on the two links for further information on the study.
Melani is now able to see patients with dystonia at Westmead Hospital. Please contact Melani at:
PO Box 533
Wentworthville, NSW, 2145
Ph: 8890 6500 Fax: 8890 7102
If you live outside the Western Sydney Local Health District area please forward a referral from your Neurologist to the Physiotherapy department and you will be contacted to arrange an appointment time.
With permission of Melani Boyce
Dr Lynley Bradnam
Professor of Physiotherapy
University of Technology Sydney
Dr Lynley Bradnam who is a Professor of Physiotherapy at the University of Technology Sydney has kindly giving us this link to her newly published article on gait and balance in people with Cervical dystonia.
With permission of Dr Lynley Bradnam
September ’16 If you would like to take part in this Study please ask your Movement Disorder Specialist to refer you to Dr Kumar.
Dr Kumar’s interview with the Dubbo Weekender, Sept2015 The interview talks about the Paul Ainsworth Family Foundation, donation to fund research at the Garvan Institute of Medical Research, for two of the most common types of dystonia which affect the (neck) Cervical Dystonia and the (vocal cords) Spasmodic Dysphonia .
With approval of the Dubbo Weekender.