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18/04/20
12/03/20
18/11/19
Cervical Dystonia Research Survey.
Dear members and sufferers of Cervical Dystonia who continue to exercise would you please consider completing this survey link below which has been sent to us by Associate Professor Lynley Bradnam University of Auckland, New Zealand. Follow this link below to the Survey:
https://auckland.au1.qualtrics.com/jfe/form/SV_2aeVmCOIOmfJTMh
With permission of Professor Lynley Bradnam University of Auckland, New Zealand.
Doctor Daniel Corp is also a DNA member. We congratulate him on this research and wish him well on his next research project on dystonia.
With permission of Doctor Daniel Corp, Elise Snashall – Woodhams from Deakin University and Margot Chiverton.
28 /06 /19
Professor of Physiotherapy
With permission of Professor Lynley Bradnam University of Auckland, New Zealand.
18/11/19
Results of the Physical Activity in Dystonia Research Survey.
Dear all,
Thank you for your interest in hearing about the results of our recent online survey regarding physical activity behavior of people with dystonia. Please find attached a brief summary of the main findings.
The study has been published in a freely available online academic journal. You can access the full paper here. Thank you for assistance with this study, we are sincerely grateful and look forward to pursing research into physical activity and exercise for people with dystonia further.
Warm regards, Dr Alana McCambridge, Dr Rebecca Meiring, and A/Prof Lynley Bradnam
Jan. 2019
Physical Activity in Dystonia Research Survey.
Dear members and sufferers of Dystonia would you please consider completing this survey link below which has been sent to us by Dr Alana McCambridge, PhD Lecturer UTS Sydney and Associate Professor Lynley Bradnam University of Auckland, New Zealand. Follow this link below to the Survey:
Physical Activity in Dystonia Survey
Or copy and paste the URL below into your internet browser:
https://utshealth.qualtrics.com/jfe/form/SV_1Fi4QoJzAl8KjiJ
With permission of Dr Alana McCambridge, PhD Lecturer UTS Sydney and Associate Professor Lynley Bradnam University of Auckland, New Zealand.
20/08/18
Dr. Florence Chang
Dear All, here is a research project from Doctor Florence Chang being carried out at Westmead Hospital.
With permission of Dr Florence Chang.
2018 Attention all with CD (cervical dystonia)
Melani Boyce, physiotherapist, Is calling for more people with CD (cervical dystonia) to be involved in a study at Westmead hospital. She is investigating the balance and function of people with CD and starting to look into falls in these people. Please click below on the two links for further information on the study.
PICF_Functional screening tests in CD_ver_2_Apr_24_2017 (1) Functional screening tests study flyer_version_1_September_12_2016 (1)
PICF_Functional screening tests in CD_ver_2_Apr_24_2017 (1)
Please Note
Melani is now able to see patients with dystonia at Westmead Hospital. Please contact Melani at:
Physiotherapy department
Westmead Hospital
PO Box 533
Wentworthville, NSW, 2145
Ph: 8890 6500 Fax: 8890 7102
Email: melani.boyce@health.nsw.gov.au
If you live outside the Western Sydney Local Health District area please forward a referral from your Neurologist to the Physiotherapy department and you will be contacted to arrange an appointment time.
With permission of Melani Boyce
14/4/17
Dr Lynley Bradnam
Professor of Physiotherapy
University of Technology Sydney
Dr Lynley Bradnam who is a Professor of Physiotherapy at the University of Technology Sydney has kindly giving us this link to her newly published article on gait and balance in people with Cervical dystonia.
http://doi.org/10.1016/j.gaitpost.2017.04.004
With permission of Dr Lynley Bradnam
September ’16 If you would like to take part in this Study please ask your Movement Disorder Specialist to refer you to Dr Kumar.
Dr Kumar’s interview with the Dubbo Weekender, Sept2015 The interview talks about the Paul Ainsworth Family Foundation, donation to fund research at the Garvan Institute of Medical Research, for two of the most common types of dystonia which affect the (neck) Cervical Dystonia and the (vocal cords) Spasmodic Dysphonia .
Dr Kishore Kumar Dubbo Weekender 2015 1
With approval of the Dubbo Weekender.
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