ADVISORY BOARD APPROVED BROCHURES  

PROVIDED & WRITTEN BY DNA Inc      

Australian Dystonia Awareness Week  5th – 12th September 2020 Incl.

Dystonia Network of Australia Inc. (DNA)  is pleased to announce       The Australian Dystonia Awareness Week on the Government Calendar for 2020 is 5th – 12th September inclusive. We are indebted to Grainger films who decided to professionally  produce the dystonia awareness radio ad for us pro-bono.  Stay tuned to our press release  and news stories pages on our web site for updates. For more information you can also email us  mailto:info@dystonia.org.au

DNA Dystonia 0.30 sec.  Radio Ad

ABC Health Report on Dystonia

Dystonia Network of Australia Inc. (DNA) is thrilled to announce as part of the Dystonia Awareness week the segment on the ABC Health Report on Dystonia is now playing. DNA members Robyn and Paul are the patients who are telling their Dystonia stories and our DNA Advisory Board Members Associate Professor Victor Fung MDS Neurologist spoke on Botox and its effective treatment of Dystonia and how it works by altering messages from the brain, Associate Professor Stephen Tisch MDS Neurologist spoke about Movement Disorders and what they are, he also spoke on new MRI called a DTI which can show Dystonia the gapes in gene research, and how patients with the gene can sometimes have no symptoms and others without the gene can have the symptoms and finally how therapies are sometimes ahead of understanding conditions and Dr Lynley Bradnam Professor of Physiotherapy (NZ) spoke about Dystonia and what it is and different types of the condition also DBS surgery and how in the early days it was thought it was a hysterical condition and advances in imagery Here is the ABC link: https://www.abc.net.au/radionational/programs/healthreport/living-with-the-mental-weight-of-dystonia/11491220

With Permission of                                                                                                                                                                                                                               James Bullen
Producer, Health Report,                                                                                                                                                                                                                                                                    ABC Radio National  Sydney, Australia

The following publications can be downloaded.

Not a member? Join today to assist us to continue to provide dystonia resources.

https://www.dystonia.org.au/wp-content/uploads/2020/09/Fact-Sheet-1-Information-for-the-Carers-In-Dystonia-Copy.pdf​

Brochure – What is Dystonia	Brochure – Writers Cramp	Brochure – Blepharospasm
Brochure – Cervical Dystonia	Brochure – Spasmodic  Dysphonia	Brochure – Genetics in Dystonia
Brochure – Deep Brain Stimulation	Brochure – Generalised Dystonia	Brochure – Psychogenic Dystonia
Brochure – Tremor in Dystonia

Dystonia Network of Australia Inc. (DNA) is the National Peak Body for All Types of Dystonia.   

https://www.healthdirect.gov.au/australian-health-services/23030054/dystonia-network-of-australia/services/leura-2780-denman 

Dystonia Network of Australia Inc. is a member of the newly formed Australian Patient Organisation Network (APON) in May 2019 which has been formed to support the Australian Not-For-Profit Health Charities sector.   https://www.cc-dr.org/networks/apon/   &   https://www.cc-dr.org/networks/apon/aponmembers/

We are registered with the  Centre for Community – Driven Research (CCDR) & the lnternational Centre for Community – Driven Research. (ICCDR)

Registered Charity ABN:  66 348 949 649  and  Charitable Fundraising No: CNF/23669 with deductible gift recipient (DGR) status 2014, and a Medical and Multidisciplinary Advisory Board. 

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